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I'm considering VNS
Fri, 12/15/2006 - 14:01I'm from Puerto Rico and I'm considering VNS therapy for my E. I have had E for 26 yrs. I have been on 13 different meds over the yrs. Now I am on Keppra and Zonegram. My sz have never been controled ( complex partials).
I want to know what to espect; what should I ask my dr.
I want to know your experiences.
thanks for your time.
Ivis
Comments
Re: Re: Re: I'm considering VNS
Submitted by fishfry on Tue, 2006-12-26 - 21:08
Hi, One must be aware the battery lasts only so long and then it must be replaced. I had excellent results on my first. Now that I had my second put in I have been having a little bit of trouble, i.e. incission site pain that has lasted too long.
Re: I'm considering VNS
Submitted by Lynn Maxwell on Tue, 2007-01-09 - 23:07
Hello Ivis,
I have not had the VNS done but have thought about it myself. I have a phone # that might help with your decision. Call 1-800-332-1375 x7572 and ask for Sandy Mata RN. She is out of Dallas, TX area. She is a registered RN and would be more than happy to send you a packet of information along with a VHS or DVD showing you what the VNS is and what the process entails. Her email address is Sandra.Mata@cyberonics.com
If you would like to talk at anytime you can email me at lmusic20032003@yahoo.com
Lynn
Re: Re: I'm considering VNS
Submitted by latin mom on Sat, 2006-12-23 - 10:05
Jamie: I'm still thinking about it. I wanted to ask u... since you have the vns.... have your life changed for the better? I know u still have sz. Can u do things now that u couldn't before because of the sz.?