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How long do YOU feel strange after a seizure?
Tue, 03/27/2012 - 23:32Comments
Re: How long do YOU feel strange after a seizure?
Submitted by zeus1223 on Fri, 2012-03-30 - 02:27
Re: How long do YOU feel strange after a seizure?
Submitted by Pony Princess on Fri, 2012-03-30 - 11:51
I know what you mean as far as memories and fear. My first Complex Partial Seizure that took me into a Generalized Tonic-Clonic Seizure was the scariest memory I think I ever had. I thought I was going to die that night. I was praying to G-d to please take care of my family and pets for me, etc. After that, it took me a long time to accept my Epilepsy. Mine popped up out of no where and hasn't been controlled as of yet. Some seizures I can bounce back from just fine and some leave me feeling scared and depressed for a good seven days.
It's taken nearly 7 years for me to accept that I'll never be "normal" again, just because I have Epilepsy. Epilepsy isn't normal. But I do have some help from loving, supportive family and my Service Dog, who is a seizure alert dog. Much of my anxiety and depression was the fear of when the next seizure was going to be? Would I hurt myself again? Etc. My service dog is giving at least some space to prevent myself from getting hurt and he allows me to know when one is coming so I know when I need to rest afterwards. It sucks to have what I do and feel what I do, but he helped eliminate some of the fear and sadness. Because of my service dog, I am finding top neurologists that are doing all they can to help find the best medications that will work with me. My seizures are no where near controlled, but they at least don't hurt anymore like they used to.
Prayers that you find some relief in the near future for yourself. :)
-Pony Princess
I know what you mean as far as memories and fear. My first Complex Partial Seizure that took me into a Generalized Tonic-Clonic Seizure was the scariest memory I think I ever had. I thought I was going to die that night. I was praying to G-d to please take care of my family and pets for me, etc. After that, it took me a long time to accept my Epilepsy. Mine popped up out of no where and hasn't been controlled as of yet. Some seizures I can bounce back from just fine and some leave me feeling scared and depressed for a good seven days.
It's taken nearly 7 years for me to accept that I'll never be "normal" again, just because I have Epilepsy. Epilepsy isn't normal. But I do have some help from loving, supportive family and my Service Dog, who is a seizure alert dog. Much of my anxiety and depression was the fear of when the next seizure was going to be? Would I hurt myself again? Etc. My service dog is giving at least some space to prevent myself from getting hurt and he allows me to know when one is coming so I know when I need to rest afterwards. It sucks to have what I do and feel what I do, but he helped eliminate some of the fear and sadness. Because of my service dog, I am finding top neurologists that are doing all they can to help find the best medications that will work with me. My seizures are no where near controlled, but they at least don't hurt anymore like they used to.
Prayers that you find some relief in the near future for yourself. :)
-Pony Princess
I remember paramedics first
Submitted by Lxncdk on Fri, 2018-03-02 - 19:46
I remember paramedics first came in my partner actually referred to himself in the third person he had come around a little by then Iv seen similar enounters, sounds like everyone is a little different & the same it is all hard to explain, especially when your going through it I couldn't even explain what he was going through fully, neither could I figure out why his was so severe & mine more minor my concern has shot through the roof for him I couldn't still even though I could understand parts I wish he could at least shout for help but his eyes didn't even respond to passing objects its freaked me out, I don't like leaving him especially when we dont know a cause his airway closed straight away there was only 1 gasp for air then convulsions and foaming for a couple minutes & eventually after coming back around he was alot more spaced out than I had been on mine it lasted hours/days for him the after effects mine at max lasted half hour and I felt alright his had no warning, Iv been on the phone and could feel something coming on just before it happened I was able to say what was happening just before I went down