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Controlling seizures without medication

Wed, 04/22/2009 - 13:27

I hope that this does not turn out to be a controversial subject. 

Let me just start by saying that I don't know what kind of seizure disorder I have.  I have had only 3 EEGs between the time I was 19 and now 35.

After the first EEG, my doctor told me I had epilepsy and put me on Tegretol.  I took the medication only for a year, and then moved over to Klonopin, which I have taken ever since.  When I was 22, I had another EEG, and the doctor told me I was fine. I was living overseas at the time of my 2nd EEG and I really can't vouch for the expertise of the doctor.

Despite what the doctor told me of my EEG, my seizures continued and had never stopped.

The seizures I was having were incredibly breif lasting only a second or two.  My eyes would roll back into my head, I would NOT fall to the ground.  I'd lose muscle control from the neck and above, and kind of twitch my head back and forth with very small jerks that were almost unnoticeable.

In any event, I was sick with the flu recently, and during my doctor's visit, I had one of these seizures, and he insisted I see a nuerologist again.

I had an EEG and MRI, and I've been told again that I have a seizure disorder.  I just started taking Lamictal.

I'm very keen to how my body responds to foods, stress, and specific situations.  

If I were able to simply avoid all the situations that trigger my seizures which in most cases are stress-induced,  I believe that I could live seizure-free without medication.

But that is not possible.  What IS possible - is for me to overcome the situations that trigger my seizures with a different mental outlook. Although I have not been able to successfully change my mental approach to the situations that cause my seizures all the time,  I have had success in many instances. 

To sum it up, I strongly believe that it would be possible to take control of my seizure disorder through a non-medicated approach. Perhaps my seizures are just different.  I don't even know at this point what kind of seizures I have.  All I know is that both of my EEGs in the US showed with certainty that I have a seizure disorder. I have left a message with my doctor today, to get more information on his diagnosis, and will post it here when I receive that information (see below).

I will continue taking my Lamictal.  What I want to know is if anybody agrees that it could be possible to correct a form of seizures with a non-medicated mental approach; any doctors or patients?

I am not a scientologist.  In fact, I'm not even sure what their approach to a seizure disorder is.  I am just stating what I think I have the power to do, and want to find out if anybody shares those ideas.

 

Update

I spoke with my doctor today.  The seizures that I have been having are simple and complex focal seizures.  

Comments

I get Da javu auras that can

Submitted by nickevans812@hotmail.com on Wed, 2015-01-14 - 03:27
I get Da javu auras that can lead to a gran mal seizure. I am anti medication. I don't trust drug companies I think they peddle poison in a lot of cases and to me it's going to be a last resort to go back on pills after my bad experiences with Epilum. As of 14 days ago I am now off meds and going to look deeply into the 3 triggers I have noticed. Sorry 4 triggers. Sleep, diet, stress, and detox from cannabis. I am convinced smoking weed helps but there is more to it. Not every time but 4/5 times I would stop smoking in the first day or two I would have a seizure. But I have been weed free for upto 9 months in the past and they didn't continue, I don't think. During those times I didn't even know I had epilepsy I just thought I was getting vision of the future because 3 times I have had major knocks to the head and (stupid maybe I know) I just figured it stimulated parts of the brain that maybe could make that possible. Over the years as my drug use got heavier and I switched to smoking very potent cannabis oil (BHO) if I went cold turkey I would get so very very ill I would just want to be shot and put out of my misery. 9 days ago I stopped smoking cannabis because the THC is just bad news for me. Screws with my thinking to much. I am unable to get weed with only CBD as my country New Zealand is ignorant when it comes to medical MJ. The first 24 hours I had a gran mal seizure. Chewed my tongue. vomited and wet the bed all in my sleep. I was lucky to not choke on the vomit. If I was on my back it would have been game over. I spent the rest of the next two days in bed throwing up but fully aware. That was 9 days ago. I have not had any since but I have had dajavu 3 times. But I would have missed 80% of meals during that time and very stressed so I am not surprised. Trying to do this alone is very hard. It would be amazing to have a group of other people wanting to achieve drug free seizure free living to team up brain power with. This is not the whole story there is finer details to it but should give people something to relate to if they go through the same thing.Please contact me if you are interested nicevans812@hotmail.com . I am a 36 year old male living in Wellington.

Sorry the email address is

Submitted by nickevans812@hotmail.com on Wed, 2015-01-14 - 03:28
Sorry the email address is nickevans812@hotmail.com       In the first post I left out the 'k' by mistake sorry.

I get Da javu auras that can

Submitted by nickevans812@hotmail.com on Wed, 2015-01-14 - 03:28
I get Da javu auras that can lead to a gran mal seizure. I am anti medication. I don't trust drug companies I think they peddle poison in a lot of cases and to me it's going to be a last resort to go back on pills after my bad experiences with Epilum. As of 14 days ago I am now off meds and going to look deeply into the 3 triggers I have noticed. Sorry 4 triggers. Sleep, diet, stress, and detox from cannabis. I am convinced smoking weed helps but there is more to it. Not every time but 4/5 times I would stop smoking in the first day or two I would have a seizure. But I have been weed free for upto 9 months in the past and they didn't continue, I don't think. During those times I didn't even know I had epilepsy I just thought I was getting vision of the future because 3 times I have had major knocks to the head and (stupid maybe I know) I just figured it stimulated parts of the brain that maybe could make that possible. Over the years as my drug use got heavier and I switched to smoking very potent cannabis oil (BHO) if I went cold turkey I would get so very very ill I would just want to be shot and put out of my misery. 9 days ago I stopped smoking cannabis because the THC is just bad news for me. Screws with my thinking to much. I am unable to get weed with only CBD as my country New Zealand is ignorant when it comes to medical MJ. The first 24 hours I had a gran mal seizure. Chewed my tongue. vomited and wet the bed all in my sleep. I was lucky to not choke on the vomit. If I was on my back it would have been game over. I spent the rest of the next two days in bed throwing up but fully aware. That was 9 days ago. I have not had any since but I have had dajavu 3 times. But I would have missed 80% of meals during that time and very stressed so I am not surprised. Trying to do this alone is very hard. It would be amazing to have a group of other people wanting to achieve drug free seizure free living to team up brain power with. This is not the whole story there is finer details to it but should give people something to relate to if they go through the same thing.Please contact me if you are interested nicevans812@hotmail.com . I am a 36 year old male living in Wellington.

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