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video to explain to kids?

Mon, 08/23/2004 - 09:52
Topic: Family & Friends
My kids are 9 and 5. We never really told them anything about my sz cuz there was no need to. Now there is, unfortunately, as my son had the honor and privilege of watching my grand mal in public last wk. (And silly me, without my Medicalert card that day., Growwwwwwl!) I'd love to hear about a video or something for families about this. I'm sure EFA has one? Does anyone know of one? Thanx

Comments

RE: RE: RE: RE: video to explain to kids?

Submitted by tibet2 on Fri, 2004-08-20 - 10:28
how do you make the link a live one?

RE: video to explain to kids?

Submitted by rhilets on Sat, 2004-08-21 - 09:52

Hi,

I also introduced my 4 year old to my epilepsy with a full blown fit at his school, of all places, a couple of weeks ago and it is still something we are trying to get through.  i hadn't had any sort of seizure for 9 years, so even though I used to get regular anxious patches, especially around flourescent lighting, I wasn't convinced enough that I would have a seizure to frighten my son with stories of what 'might happen'.  As a result, he was somewhat traumatised and thought I was dead etc.. poor little guy.  I now feel I need to educate him about what to do, and not to panic etc, but how to do it so that you don't frighten them or alienate them from the mum that they know and love.

Of course, I hope that I go at least another 9 years with nothing but as I see from reading everyone's stories on this site, it is so unpredictable and the people closest to us must be prepared.

Good luck to you and I hope you too don't have to deal with this situation again for a long time,

Rhiannon

 

Hi,

I also introduced my 4 year old to my epilepsy with a full blown fit at his school, of all places, a couple of weeks ago and it is still something we are trying to get through.  i hadn't had any sort of seizure for 9 years, so even though I used to get regular anxious patches, especially around flourescent lighting, I wasn't convinced enough that I would have a seizure to frighten my son with stories of what 'might happen'.  As a result, he was somewhat traumatised and thought I was dead etc.. poor little guy.  I now feel I need to educate him about what to do, and not to panic etc, but how to do it so that you don't frighten them or alienate them from the mum that they know and love.

Of course, I hope that I go at least another 9 years with nothing but as I see from reading everyone's stories on this site, it is so unpredictable and the people closest to us must be prepared.

Good luck to you and I hope you too don't have to deal with this situation again for a long time,

Rhiannon

 

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