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My 17 year old son has Progressive Myoclonic Epilepsy...

Wed, 02/09/2005 - 01:21

HI MY NAME IS ANN AND I AM NEW TO THIS SITE.  I AM LOOKING FOR ANYONE WHO HAS A CHILD WITH PROGRESSIVE MYOCLONIC EPILEPSY OR ANYONE THAT KNOWS OF A GOOD SITE WHERE I CAN GET  INFORMATION ABOUT THIS DISEASE.  MY 17 YEAR OLD SON ZACH WAS DIAGNOSED IN 2000 AND HIS CONDTION IS DETERIORATING RAPIDLY. THROUGHOUT THE YEARS I HAVE FOUND VARIOUS SITES BUT MOST OF THEM ARE OUTDATED. I AM LOOKING FOR SOMETHING THAT IS MORE CURRENT AS WELL AS INFORMATION THAT WOULD BE RELATIVELY EASY FOR MY OTHER CHILDREN TO READ AND UNDERSTAND.  I WOULD REALLY APPRECIATE ANY HELP THAT YOU CAN GIVE ME. 

Comments

RE: My 17 year old son has Progressive Myoclonic Epilepsy...

Submitted by angel_lts on Thu, 2005-05-05 - 06:56
I have a support group that you might want to check out.http://health.groups.yahoo.com/group/EpilepsyApproach/Lisa

RE: My 17 year old son has Progressive Myoclonic Epilepsy...

Submitted by TRAVISMOM on Thu, 2005-05-05 - 10:09
I just sent you an e-mail, but am not sure how I'll get a response as I'm computer illiterate, so I just found this. Please foirgive me if you get both. Your son sound like my 18 yr old son Travis. I was just wondering the difference between the two types of epilepsy - compare nots, as Travis gets worse all the time and keeps outgrowing meds!Thanks,Kim MooreWarsaw, Indiana

RE: My 17 year old son has Progressive Myoclonic Epilepsy...

Submitted by rockinghorse on Fri, 2005-05-06 - 15:27
did you get my message about my son with pme are you in the states

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