My 17 year old son has Progressive Myoclonic Epilepsy...

Hi my daughter may have JME, she is photosensitive and has eye flicker plus occasional small jerks.NO tonic-clonics. Can you tell me please what tests your son had for PJME.If you dont mind telling me how ha syour sons symtoms progrssed in the four years.Regards Deborah

Ann, I know of a guy that is 35 years old and had gran mal convulsions from the time he was 11 until age 15 that is when he went to Parkland Hospital in Dallas(epilepsy program),where after treatment the gran mals came under control with (DEPAKOTE)and that worked until he was 34 and his speech started sturtting,hands,arms,and legs would jerk sometimes his legs jerked so hard he would fall or almost fall.His epitoligist has him on Depakote,Topamax,Colonipin,and Lamictal(he also tried Keppra)Last January he fell because of his legs jerked and shattered his elbow.I have been also searching for more information on this subject myself to help him cope,but there is just really not much out there try Calling U.A.M.S. in Little Rock, Arkansas and they may be able to send more information,I heard they are supposed to have a Epilepsy Study Center there