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Complex Partial Seizures
Tue, 03/22/2005 - 11:40Comments
RE: Complex Partial Seizures
Submitted by jackphil on Fri, 2005-03-11 - 15:10
My daughter has had complex partial seizures since she was 3 years old she is now 17 and was seizure free for 7 years until we stopped meds . She was good for three months after weening for two and a half years. She is now back on a low dose , as she has had two seizures so far. I know what all of these people are saying but you must remember that you are their mothers and if you can believe in that alone you are going to be just fine. But you kinow you have to try to be tough through this and do what you think is right and be an advocate for your child even if you are told you are an adversary. The only people you are an adversary to is anyone who doesn't believe you . Hold your head high girl as the fight has just begun !!!
Good Luck
My daughter has had complex partial seizures since she was 3 years old she is now 17 and was seizure free for 7 years until we stopped meds . She was good for three months after weening for two and a half years. She is now back on a low dose , as she has had two seizures so far. I know what all of these people are saying but you must remember that you are their mothers and if you can believe in that alone you are going to be just fine. But you kinow you have to try to be tough through this and do what you think is right and be an advocate for your child even if you are told you are an adversary. The only people you are an adversary to is anyone who doesn't believe you . Hold your head high girl as the fight has just begun !!!
Good Luck
RE: RE: Complex Partial Seizures
Submitted by Pegasus332266 on Fri, 2005-03-11 - 13:00
Thank you for your message! I'm sorry you feel such frustration also. But, in some way, I feel relieved that I am not the only one who feels this way. I also KNOW something is wrong with my daughter. We've been to the neurologist maybe 5 times. I think the total amount of time he has actually spent with her is maybe 30 minutes TOTAL. But yet, he is supposed to know her more than me! I know something isn't right.