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What are the unmet medical and social needs of people with epilepsy?
Wed, 12/19/2007 - 08:50Calling all users!
Recently the board members of Epilepsy Therapy Project shared their perspectives on the unmet medical needs for people with epilepsy. These experts and many others help scientists see where new research and development is needed.
I'd like to hear from community users about what you think are the unmet needs - both the medical and social needs. Add your views here and we'll write this up to share with everyone!
Thanks for your help!
Epi_help
Comments
Re: What are the unmet medical and social needs of people with e
Submitted by ivanpah on Mon, 2008-07-14 - 17:21
Re: What are the unmet medical and social needs of people with e
Submitted by Anonymous on Wed, 2008-04-23 - 06:49
Great comments everyone! I'm going to put your remarks into an aticle for all to see. Keep it up!
Epi_help, Resource Specialist
Great comments everyone! I'm going to put your remarks into an aticle for all to see. Keep it up!
Epi_help, Resource Specialist
Re: What are the unmet medical and social needs of people with e
Submitted by mamasaw on Tue, 2008-04-22 - 19:26
1. Horrible costs of medicine
2. Unemployment/Underemployment due to transportation problems when unable to drive. How can you work if you don't have access to public transportation?
3. Social services- trying to wade through the unbelievable paperwork for social services(Medicaid, Social Security disability). It's a joke! We just flat out gave up because they made it so confusing and frustrating. A 3 yr. wait to get a hearing for SS disability!!! That should be criminal!
4. Public awareness. We don't have a celebrity spokesperson who is our advocate to push for more research and studies.
1. Horrible costs of medicine
2. Unemployment/Underemployment due to transportation problems when unable to drive. How can you work if you don't have access to public transportation?
3. Social services- trying to wade through the unbelievable paperwork for social services(Medicaid, Social Security disability). It's a joke! We just flat out gave up because they made it so confusing and frustrating. A 3 yr. wait to get a hearing for SS disability!!! That should be criminal!
4. Public awareness. We don't have a celebrity spokesperson who is our advocate to push for more research and studies.