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What are the unmet medical and social needs of people with epilepsy?

Wed, 12/19/2007 - 08:50

Topic: Epilepsy.com Help

Calling all users!

Recently the board members of Epilepsy Therapy Project shared their perspectives on the unmet medical needs for people with epilepsy. These experts and many others help scientists see where new research and development is needed.

I'd like to hear from community users about what you think are the unmet needs - both the medical and social needs. Add your views here and we'll write this up to share with everyone!

Thanks for your help!

Epi_help

Comments

Re: unmet medical and social needs

Submitted by neworldgold on Fri, 2008-04-25 - 06:57

[...] The medical needs have definitely become complicated in US, due to a large number of reasons. Surgery is very expensive, of course. Many medications are expensive as well. Many of us always seem to fall into the tough trap of finding the right medication/s and the correct dosage/s. That isn't very easy on the pocketbook. Epecially when finances are tight already. It is soon a online drugstore! Then you find out that your epilepsy is medically intractable. [...]

Remedical and social needs of people with epilepsy?

Submitted by mally hoo on Fri, 2008-02-15 - 02:52

Heather addressed it beautifully. I don't know how much can be done without insurance reform and lowering the costs of prescriptions. I pay $150 weekly just for for Topamax. I think thats robbery. And insurance won't touch my epilepsy. As for social issues, thats a big issue in the South especially in particularlly religious areas. For children, it's a medical condition, for adults it's a weakness with alot of superstition still tied to it. I don't feel there is enough public awareness anywhere in America. I don't see that changing without getting the same advertising and coverage other causes like breast cancer and heart disease get. We could learn from Great Britain actually and Epilepsy Action. They"ve been very successful in educating the public. Also, there has to be better doctor patient relations. So much of what happens in epilepsy depends on patient description, a doctor that doesn't listen can't make a correct diagnosis or provide quality care. Melissa D

unmet medical and social needs of people with epilepsy?

Submitted by Anonymous on Tue, 2008-04-08 - 22:53

Okay everyone.. I'm bumping this up again. I'd like users input on this. Then I'm going to write up YOUR opinions on this topic for the home page and the professional site of epilepsy.com. Just another way of helping us all communicate and know what's important to people with epilepsy.

You don't need to make it long,,, just put in your 2 cents worth!

Thanks!

Epi_help, Resource Specialist

You don't need to make it long,,, just put in your 2 cents worth!

Thanks!

Epi_help, Resource Specialist

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