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Question

Mon, 11/15/2010 - 14:45
Topic: Epilepsy: Insights & Strategies
Hey, just wondering.... does anyone with epilepsy usually call someone they trust or feel safe with right after they have a seizure? As in no matter where you are or with people you know such as your friends, you only come up with one or two names to call for help. Because everytime I have a seizure, there's usually only one or two names that immediately come to me to call for help which are my two friends I trust a lot which are Lydia Fang and Cheryl Han. Even with other friends around me, I tell them to call Lydia or Cheryl. I never think of calling family members for help. I dunno why. I trust Lydia and Cheryl more than I trust family members. So, I'm wondering if anyone has similar expierences. Calling people or friends you trust the most for help after a seizure. Another example is like two days ago on Sunday, I had a seizure at a food court after church service while having lunch with my friends. Later on they told me I had asked them to call Lydia for help when I first came out of my seizure but I don't remember telling anyone to call Lydia. 

Comments

Re: Question

Submitted by tcameron on Tue, 2010-11-30 - 19:59

Yes!!!  I always insist on getting hold of my best friend, either by phone, or have him come visit me after a seizure.  I do this while still post-ictally confused.  He's the only person I completely trust. 

I like to work out a lot, but only with him because I've experienced too many seizures while exercising.  Just after our work-out a couple months ago, I had a seizure in the locker room.  I refused to allow anyone to get near me.  I demanded that they find him and bring him in to get me.  All the ladies had to leave and the locker room was closed until he came in to get me out.

I don't remember any of it, so I wouldn't even know I had a seizure if he didn't tell me.   

 

 

Yes!!!  I always insist on getting hold of my best friend, either by phone, or have him come visit me after a seizure.  I do this while still post-ictally confused.  He's the only person I completely trust. 

I like to work out a lot, but only with him because I've experienced too many seizures while exercising.  Just after our work-out a couple months ago, I had a seizure in the locker room.  I refused to allow anyone to get near me.  I demanded that they find him and bring him in to get me.  All the ladies had to leave and the locker room was closed until he came in to get me out.

I don't remember any of it, so I wouldn't even know I had a seizure if he didn't tell me.   

 

 

Re: Question

Submitted by phylisfjohnson on Wed, 2010-12-01 - 11:12

I think calling someone you trust is an excellent idea.  Because often you're confused, tired, disoriented and they can help you "get back on your feet" and take you to a place where you're comfortable.  Do you have them on speed dial as #2 and #3?  (Usually #1 is for voice mail.)    Phylis Feiner Johnson   www.epilepsytalk.com

 

I think calling someone you trust is an excellent idea.  Because often you're confused, tired, disoriented and they can help you "get back on your feet" and take you to a place where you're comfortable.  Do you have them on speed dial as #2 and #3?  (Usually #1 is for voice mail.)    Phylis Feiner Johnson   www.epilepsytalk.com

 

Re: Question

Submitted by tcameron on Wed, 2010-12-01 - 19:06
My caregiver is #2 on my speed dial.  I've shown all my friends how to find him from my phone. 

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