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Precocious Puberty & Hormone Treatment

Tue, 10/13/2015 - 09:22

Hello, my daughter is 8 and was diagnosed with complex partial epilepsy about a year and a half ago after having some episodes and a positive EEG.

She is taking Keppra but still had seizures once every 4-8 weeks. In addition, she would have some absence episodes a few days coming up to a regular seizure.
A few months ago we were also told she had started the pre-puberty process and was put on a hormone treatment to stop/delay this process.

Since starting on the injections, she is much better form and has had no absence or regular seizures. The neurologist has told us the treatment was going to have no impact but we can see it’s having a positive impact on controlling her epilepsy.

It is early days for us to understand if the hormone treatment is really responsible for the improvement on seizure control, we think so at this point, I’m wondering if anybody has any experience in a similar situation, I could not find any relevant information online. She has had a normal MRI also checking the pituitary gland.

Many thanks, Maria

Comments

Hi Amy Jo, I'm also wondering

Submitted by Maria Alcazar on Wed, 2015-10-14 - 04:44
Hi Amy Jo, I'm also wondering if the early puberty or hormonal changes may have played a role on the development of epilepsy since they both seem to have appeared around the same time. My GP thinks they are related but I wish there was more specialist information available. I will check about sing a paediatric epileptologist, thanks for advice.

Maria  I do know that many

Submitted by just_joe on Wed, 2015-10-14 - 15:12
Maria  I do know that many people with epilepsy can get all their seizures controlled. I also know that there are many that will have seizures the remainder of their lives. I am one of them. I know about medications I too take keppra. Depending on when she started taking her meds might also make a difference. If she has been on them for 4-8 weeks then her body might not have completely build up the therapeutic levels the neurologist wants her at. If she has other seizures her dosages could be a too low or too high. Adjustments can be made, While changing from  kid to a teen (hormones and size) my dosages were changed 4-5 times in a 9 month period of time. I changes from a 4'8" kid to a 5'6" crazy teen. went from 85 lbs to 135 lbs. SO weight changes and  hormonal changes can have affects on medications.

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