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no diagnosis

Thu, 08/09/2007 - 07:13
Hi every one, well i said I wouldnt get back to you all untill in knew what was going on, Had my eeg and saw the neurolowitch today, and she said they found nothing, I knew this was the case as I felt no attacks during my 24 hour take home eeg. she has told me my symptoms are to many, This dosnt surprise me as it's been 13 years of hellish symptoms ,from my constipation ibs , dreamy states, ataxia ect, the list is so long. she said she feels this is anxiety. manifesting all this, right now i'm defeated and very low I thought I'd have an answer today and could get some meds to get me through this next month. she said if you have another episode you can come straight in and we'l do an eeg within that hour,(if she could have done that why not in the 1st place) I said would it still show up a 1/2 hour after an attack and she said yes. (is this correct)????? I have an amazing 22 year old daughter, a magnificent husband, and the best life anyone could hope for so why would i have anxiety? when i told my mum today , she said but you've always had these symptoms. we just thought they were part of your personality. so what dose one make of all this. for me it say's I'm crazy, and I havent stopped doubting myself sinse, am i somatizing manifesting? sorry but i really need a pep talk here. thankyou all , jen from oz

Comments

celiac

Submitted by jenoz on Fri, 2007-11-30 - 15:39
thanks sunflo, yes I have been tested and suprisingly turned out I wasnt, I had the gene tests, and nothing, I was gluten free for 2 years and at first I went into remission going gluten free, with mega doses of vits, but my remission was short lived, thanks so much jenny

Re: Hi jenoz, I didn't see or

Submitted by kaitlynsmom on Thu, 2007-08-09 - 14:33
Just something that my son's GI doctor told us about Celiac Disease and testing for it.... she told us to not try the elimination diet until after they did some testing because it can cause false negatives. That even if the diet works they won't be able to determine that's the cause and actually diagnose you with it because the tests won't come back with accurate results, also it isn't an easy diet to follow especially if you haven't been confirmed to have it. I think that it's important to get tested and then decide with medical advice to do the diet. Just what the doctors told us as we are currently trying to get my son tested for Celiac's and also possibly my daugther. Good luck!! Take care. Emily

Re: Re: Hi jenoz, I didn't see or

Submitted by SunflowerPower on Sat, 2007-08-11 - 21:24
Oh yeah. I fogot about that. Thanks Emily.

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