Myoclonic jerks occuring in the evening?

Re: Myoclonic jerks occuring in the evening?

Submitted by mabraham on Fri, 2010-03-19 - 03:25

I had temporal/frontal lobe seizures that were getting worse. And It was affecting my speech center and memory. After unsucessfull on Keppra and could not take generic Lamictal. So Lamictal was working pretty good. But seizures came back and my original doctor disapeared. My new doctor increased the lamictal. to 300 mI a day and I started having Myoclonic jerks after taking more Lamictal. after increasing the meds maybe a few weeks in. The Myoclonic jerks became almost every 5-10 minutes. I ended up in the hospital. And then my doctor Changed my meds to Lamictal XR. I still get the Myoclonic Jerks when I get close to needing my medicine. My seizures had changed from the deja vu feeling I was getting with disorientation. And memory problems. It became just this big jerking feeling. I would get a tad of spaced out before it happens. I feel it coming on. The last one I had however. I felt coming on but when I went into it. I got completely disoriented when I looked at my friend. Then had a hard time talking to my husband to tell him what was happening to me. It was a struggle to remember the words. And I had a few more seizures right in a row. I wasn't sure if this directly speaks to what the discussion was about. But I am worried because I am having trouble controlling this and it seems to happen regardless of the medicine. I am looking for advice as to what to do. Should I be on a different medicine. Because I get worried that my memory will be altered permanently. My sister had epilepsy and died of a seizure. And my mother has epilepsy with Grand Mal seizures. I am concerned. I don't want to end up like my poor sister. My health care was cut as well (big surprise these days) And the medicine is 1000 dollars. And my husband and I are on Cobra which will run out in a few months. Can anyone point me in the right direction. I'll take any advice you have.

Re: Myoclonic jerks occuring in the evening?

Submitted by kostareyna on Tue, 2010-06-08 - 14:09

The truth is i regret i ever toke pills,at first i had them only in the morning and not every morning,after taking depalet and later lamictal not only it started to happen everyday but it started happening in the middle of the day as well.I regret i ever listened to my doctor who was ignorant and apparently i might not have epilepsy at all,anyway my condition is controllable by me,but if i knew this before i would never take pills and would do it in my way like i do now just without all those seizures during the day. tip=try not closing your eyes in the morning i think when you see surroundings it helps with your waves in the brain and normalizes them

Re: Myoclonic jerks occuring in the evening?

Submitted by garymmorgan on Sun, 2011-01-02 - 21:54

Hi,

this is the first time i`ve checked this site out & found it after putting "how does Tramadol affect myoclonic jerking" into Google search.....the reason for the search is because my doctor told me that i had the condition after a visit  & suffering from sudden muscle spasms in the evening/night that stop me sleeping & that were very repetitive ( i could even time them!).I was prescribed Tramadol which is a pain killer to my knowledge & this suprised me as i wasn`t experiencing any pain during these "attacks" BUT there must be an ingredient in Tramadol as when I take 2 capules around 8-10pm(no later) I don`t have any attacks throughout the night-meaning I actually get some decent sleep.

This has been going on for some years now with me just taking the meds but now it`s got to the stage where I`m getting anxious about how to stop/cure this so no medication is required-don`t want to need Tramadol for the rest of my life IF I have the choice....

Any thoughts or suggestions/feedback is appreciated.

With Thanks

Gary