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My son diagnosed with Pituitary Adenoma

Thu, 11/22/2007 - 13:09
Hello, my name is Susana. My son, Joey, 14 years old, was diagnosed with having Absence Seizures due to Generalized Epilepsy after a near-drowning accident in August 2007. A brain scan MRI also revealed a pituitary tumor. Joey's neurologist referred him to an endocrinologist who confirmed Joey has a pituitary adenoma. The doctors will do another MRI for a re-check in four months, but say not to worry at this point. The endocrinologist said that if Joey's MRI were that of an adult, they'd have to begin treatment immediately, but because Joey is in puberty, we should wait for signs and symptoms (including gigantism, exaggerated cave-man-like facial features, enlarged hands, darkening of the skin, vision problems, increasing blindness, etc.). The doctor refused to continue naming symptoms so he wouldn't give Joey nightmares. He added that it's rare for the tumor to become a concern because it often goes away in adolescents. At this point, neither doctor thinks the tumor is related to the seizures. Has anyone else with Epilepsy ever been diagnosed with a Pituitary Adenoma? Has anyone else heard of benign tumors "vanishing" during puberty? I'm concerned about following the doctors' approach to just "wait and see" if and how the tumor develops. It may be rare for it to cause any harm, but I thought Epilepsy was rare, too. Joey is adamant that he will never allow anyone to operate on his brain! Any advice is appreciated.

Comments

Re: My son diagnosed with Pituitary Adenoma

Submitted by epilepticspouse on Tue, 2010-07-27 - 19:04
My wife is going to get an MRI to check if she has a Pituitary Adenoma, and she has had epilepsy since she was 16. I came on here looking myself to see if there is a connection between the gland adenoma and the seizures. I will let you know if I find anything. - My wife has EXTREME fatigue that keeps her from doing much of anything many days. - she has osteopenia - she has gluten intollerance - she has bad skin issues that are basically unresolvable with the dermatologist - she has grand mal seizures - her thyroid function is not normal - she has some hormonal issues and issues with her reproductive system that cause bad pain each month. - she may have some endometriosis problems. Overall, she's miserable right now, and still hoping to find an answer to the fatigue. I would love to have an answer to things like this.

Hello my son Joseph 22 yrs

Submitted by Missygal75 on Thu, 2019-08-01 - 23:01
Hello my son Joseph 22 yrs old just died of this wait and see approach. Another neurosurgeon wanted to remove it asap. Get another opinion and find the best team of doctors to treat this. University of Michigan is suppose to be one of the best, that's where I wanted to take my son, but his wife refused, they were married only 8 months . RIP my beautiful Joseph 4/11/19

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