Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
DOOSE SYNDROME
Sun, 03/25/2007 - 18:16Hi! my 5 yr daugther was diagnosed with Doose Syndrome (Myoclonic Astatic Epilepsy). Can anyone help me in getting information about this syndrome? It seems that there is not too much information or I am not looking in the correct places. I will appreciate any orientation on this. Thanks...Jorge.
Comments
Re: DOOSE SYNDROME
Submitted by Michtom on Mon, 2007-03-26 - 08:20
Hi. I had a bit of a hunt. I think there is more informaion if you searchunder the 'myoclonic astatic epilepsy, which I think is the alternative name for Doose syndromes. The first link I think loks the most informative.
www.doosesyndrome.com
www.epilepsy.org.uk/info/astatic.html
www.ilae-epilepsy.org/ctf/myoclonic_astatic_child.html
www.epilepsyontario.org/client/EO/EOWeb.nsf/web/Epileptic+Syndromes+in+Childhood
good luck - Michtom
Re: DOOSE SYNDROME
Submitted by Michtom on Mon, 2007-03-26 - 08:29
AOne more site that you might find useful is this one (www.massgeneral.org/childhoodepilepsy). I relaly like the way it approaches our kids like the whole people they are, and provides good info re learning etc etc
Re: DOOSE SYNDROME
Submitted by spiz on Sun, 2007-03-25 - 23:23
Hello Jorge, First - here is a link for a parent support group for children who have Doose Syndrome, otherwise known as Myoclonic-Astatic Epilepsy and also explained under Cryptogenic and Idiopathic Generalized Epilepsies. Doose Syndrom Support Group Here are some links I'm looking up now and I'll post anymore I find on this thread as I find them... Epilepsy Syndromes : This one also explains the role EEG's have in these syndromes. MAE Website :The MAE website for parents of those with Doose Syndrome. I'll try to find more that doesn't repeat itself like the majority on the net does. Hope this helps some. Take care! -Spiz