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Diagnosis and Treatment - New to Seizures

Thu, 03/13/2008 - 18:09

I am dealing with some frustrations regarding my recent diagnosis of "seizure disorder" as of October 2006 where I experienced a seizure. (Loss of consciousness, shaking on the ground, upon awakinging a few minutes later, I experienced extreme confusion). I was taken to the hospital, treated and released within hours.

Upon the seizure I began seeing a Neurologist. I was not to drive for a period of 6 months.My preliminary EEG showed some abnormal activity and I was put on Lamictal 200mg (later reduced to 150mg upon losing about 15 lbs and I was experiencing tremors)

 The problem I have is that 10 months prior in January of 2006, I was hospitalized for an "episode". Since I had no history of seizures at the time, I was treated for psychosis and "diagnosed" with Bipolar disorder and placed on a psychiatric ward. This was a very traumatizing event for me. I had been taking a new antidepressant at the time and had told the doctor that I felt more depressed with this medication but I followed his advice and continued taking the antidepressant (which did have psychosis and seizures as potential side effects).

Upon being diagnosed with "bipolar disorder" a psychiatrist put me on so many medications that I questioned the safty of taking so many drugs at such high dosages partuculary because of my small size and body weight . My concerns were dismissed and following the addition of a 4th medication I had my real seizure (October 2006). 

When I had my seizure in October of 2006, I began researching seizures and I found that some of my symptoms in January 2006 strongly resembled a potential aura or partial seizure (My conclusions from my research). A pungent smell in particular, loss of bladder control, no loss of consciousness, repitition of certain phrases, and extreme lack of cognitive functioning. (What do you think of these symptoms?)

Since October of 2006, I have been taking lamictal (which is also given to bipolar patients) I have been doing quite well. No real seizures.

I recently had another "episode" just last week (March 3rd 2008) and I am trying to find answers as what my real diagnosis should be. I was once again placed on a psychiatric ward with suicidal patients, young girls cutting themselves and potentially violent individuals. I do not believe that I should be treated as a psychiatric patient but because this is new to me I am having trouble finding a doctor who will listen.

My symptoms this time once again began with confusion and lack of focus at work. I did experience some hallucinations (deja vu I don't know) I did not remember a smell this time around but I experienced massive headaches within the last 4 days of my "episode". I had thrown off my schedule by taking my lamictal in the evenings. Lamictal is a stimulant for me and I could not sleep for those 4 nights.

So my question is: am I nuts or are these all seizure related issues. Because unfortunately and in all honesty, psychiatric patients are not treated the same and I could have been kept on this psychiatric ward for 2 weeks or longer (against my will). As I have said it has been such a tramatizing event (2x now) that I have been waking up these last few nights gasping out of anxiety and fear that if it happens again I am going to be placed on a ward.

So if these symptoms are related to my seizure disorder please give me some advice on how I can go about finding a doctor who will take my concerns seriously.

 

Comments

Re: Diagnosis and Treatment - New to Seizures

Submitted by sarankarthi on Mon, 2008-06-02 - 17:12

 

hey am really thankful for the article that says truth and finding doctors over a lot is kinda limba... hopefully this helped me alot.... and also searching for a great resouces which can help me to gain more on this.....

Suffering from an addiction. This website has a lot of great resources and treatment centers. http://www.treatmentcenters.org


 

hey am really thankful for the article that says truth and finding doctors over a lot is kinda limba... hopefully this helped me alot.... and also searching for a great resouces which can help me to gain more on this.....

Suffering from an addiction. This website has a lot of great resources and treatment centers. http://www.treatmentcenters.org

Re: Diagnosis and Treatment - New to Seizures

Submitted by tammyduc7 on Tue, 2008-10-07 - 10:32

Hi.I am so sorry to hear about your troubles .My son is five and on Lamictal and doing well now but he has been through symptoms exactly like yours before meds and he is now having trouble with coordination and frequent dragging of his leg and not being able to button his shirts and other things such as cutting or holding a pen or pencil.We had a period of 2 years where he had no seizures at all but then they came back worse than before.Best wishes on your search for a doctor.I think you were treated terribly and I pray that everything improves.

                                                                                         Tammy

Hi.I am so sorry to hear about your troubles .My son is five and on Lamictal and doing well now but he has been through symptoms exactly like yours before meds and he is now having trouble with coordination and frequent dragging of his leg and not being able to button his shirts and other things such as cutting or holding a pen or pencil.We had a period of 2 years where he had no seizures at all but then they came back worse than before.Best wishes on your search for a doctor.I think you were treated terribly and I pray that everything improves.

                                                                                         Tammy

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