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Amnesia Seizures!

Thu, 04/05/2012 - 23:45
Hi there, so I should preface everything by saying that I have not yet been diagnosed with epilepsy, and quite honestly, hope that I never will. But what's going on is that I'm having these bizarre seizures, or at least the doctors all think that they're seizures, and since no one can think of any cause, epilepsy is on the table. I'm 30 years old, and female. My "seizures" involve an aura that lasts a few minutes and then intensifies right before it happens. I can't explain the aura. It's just a weird, swimming feeling with a pressure in my head, I guess. And then the seizure hits. I don't shake or anything like that. I simply forget EVERYTHING. I don't know where I am, et cetera. It lasts a minute or two. Sometimes my partner is there and she tells me I get very pale and I ask the same questions over and over (e.g. "Where am I? Where am I?") As it's ending, I get a wave of intense nausea and start retching (but rarely throw up). When it's over, I'm in a daze for hours, and I have a forgetful, "brain-fried" feeling. I've had about 20 of these, starting last July. They come in clusters, about 2 or 3 over a 3 day span, with a month or two in between. I've also started having periodic thrashes in bed, where my whole body jerks. So they did a regular EEG, but since I didn't have a seizure during it, they said it showed nothing. CAT scan, MRA and MRI were all normal. Now they want to either do an 8-hour EEG or preferably, admit me to the hospital for 1-3 days and do a video EEG. Epilepsy is definitely on the table, particularly Transient Epileptic Amnesia. (Do any of you have this?) The problem is this: they'd have to get me during one of my seizure clusters, and they can't really schedule me that quickly. I do NOT want to go to the hospital for three days. Hospitals terrify me so badly. I have a phobia, really. I panic. Also, since most of my seizures happen in the shower, I'm not sure how they'd try to trigger it during an EEG. What I really would like is to skip the EEG stuff altogether and try something else. I have an appt with my neurologist in a few weeks to discuss this, and I'd like to come prepared. I'm wondering if there are any other ways of assessing whether they're seizures, what types of seizures, etc. I also wonder what you think of my requesting that they start me on anti-seizure meds and see whether they stop. Wouldn't that be diagnostic? Thanks for reading all of this, and I really appreciate your responses in advance.

Comments

Please could I ask what

Submitted by elloise1980 on Tue, 2018-05-01 - 14:29
Please could I ask what dosage of Lamotrigine you are on? My father is already on this for nocturnal seizures and experienced this for the first time yesterday. We are wondering if we need to change the dosage.Also do you ever get vertigo with it. Thanks in advanceElloise

Got deleted. I remember going

Submitted by mattLogue on Fri, 2019-08-16 - 05:24
Got deleted. I remember going on coasters today, but if you ask me the names, I may only give you 4 outy of the 6,7,9 ?I dont know how many. Wehn I close my eyes, I visualize riding on the coasters along with the senation of it, that isn't really a bad thing, but the confusion ...I can't preform a job at Wendys for periods, I will stare blankly and forget why I came, wrfon from the order screen to the fry station I forget fry orders as short as two lines. I got a 3.85 in college 5 years ago.No EtOH, no Drugs, but hi 2012 had some cold medcine and alcohol abuse. No EtOH use in past month - gives me a bad shooting headache. No illicit drugs. No cold meds. Three SSRIs!

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