vns therapy side effects

Well I was called back by Cyberonics the afternoon of March 13,2007 and told because "because you had your vns unit implanted in August 2004 Cyberonics is not responsible whatsoever if you unit malfunctions as the vns unit has only a 2 year warranty". This is hard to believe for me. Albert Richenberger

Youre not the only one with something totally funky going on like that!!!! I had the VNS originally implanted in June 2000. I had the generator replaced in September 2006. I had no problems whatsoever with the old generator. Then, about 5 weeks after the surgery for the replacement generator, early one evening I started feeling the pulse. Now, usually, my VNS is put on a setting so I don't even feel a tickle for more than an hour after the setting is changed, so this is very strange. The feeling on my neck became progressively worse throughout the evening until it became a sharp pain where it seemed like the lead wires were placed. Let me tell you, I had never felt anything like that before in my life. Like you, my neurologist told me to tape the magnet to the generator to turn it off (!!!!). That being done, I was brought in for some x-rays which showed positively nothing - the wires had not become loosened or misplaced, and neither had the generator. So, he turned it off. It was left off for about 3 months. Well, I was left in a pickle, because since the VNS was implanted the frequency of my refractory seizures had greatly decreased. So, I could either have it taken out, which was undesirable, because it was part of my therapy, or leave it in, which was also undesirable, because who knows if this will happen again? I left it in. It's turned back up to its normal settings, and I havent had the problems since. But I really hate Cyberonics - I have read their stupid manual front to back and all their warnings so many times and they mention NOTHING like this. Nothing!