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vns therapy side effects
Wed, 02/15/2006 - 10:10Topic: Complementary Therapies
I joined this site yesterday and I'm interesting in touching base with anyone who has a vns. In particular I would like to find out if anyone has experienced any unusual side effects not mentioned by Cyberonics. I occasionally experience 'tingling' in my neck and shoulder - this is actually quite unpleasant and it has been severe enough to warrant having my vns temporarily turned off. At one point last summer it felt like I was being repeatedly stung by a bee or something like that (I'm not sure exactly how to describe it). Cyberonics claims that no one has ever mentioned anything similar to this. I have been quite happy with my vns - it has helped stop many seizures once they have started, which has meant fewer trips to the ER but if this problem became really severe again I wouldn't be able to keep my vns turned on. Please let me know if you have experienced anything like this - I would like to know - Cyberonics makes it sound like I'm crazy or something. Thanks!!!
Comments
Re: Hi! I had a VNS unit
Submitted by birdbomb on Wed, 2007-03-14 - 15:50
Albert, This needs to reported to the FDA. Both you and your doctor can do this.
https://www.accessdata.fda.gov/scripts/medwatch/
Cyberonics will wine and dine you to get you in the door but kick you to the cub as soon as you have a problem. The unit has a one year Limited Replacement Warranty
"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)
Work like you don't need money, Love like you've never been hurt,
And dance like no one's watching.
Albert Richenberger Hi I
Submitted by Albert Richenberger on Wed, 2007-03-14 - 19:59
Albert Richenberger
Hi I tried to accomplish what you suggested but I don't have any luck typing in www.acessdata.fda.gov/scripts/medwatch
This company makes me feel like I have been abandoned by them.
Thanks, Albert Richenberger
"If you are going through
Submitted by birdbomb on Wed, 2007-03-14 - 15:32
"If you are going through hell, keep going." (Sir Winston Churchill, 1874-1965) Work like you don't need money, Love like you've never been hurt, And dance like no one's watching.