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Any info on Ketogenic Diet

Wed, 02/09/2005 - 18:07

Topic: Complementary Therapies

My three year old son has daily myoclonic seizures, as well as some generalized seizures. He is maxed out on Lamictal. He takes B6, and two weeks ago Zonegran was added to his medications. His seizures have gotten a little bit better, but he has lost words, and has regressed. Prior to this, we tried Topomax, and he had a horrible reaction.We want to try the Ketogenic Diet. I just e-mailed Johns Hopkins about it. Have any of you tried it? Any success? Thank you!

Comments

Re: RE: Any info on Ketogenic Diet

Submitted by alepatmat on Fri, 2007-02-16 - 11:54

Hi Jaz, I am new to this forum, but was reading posts about the Ketogenic diet, and was very excited to read about your son, who loved the diet. My son is 6. His seizures started as febrile when he was two, progressed to generalized, and now he has been dx with LGS. We have been through 8 medications and we are at the end of ones we want to try. We have spoken to our neuro, and we have decided to do the Ketogenic Diet, the beginning of April. I am interested to know what it was like in the beginning, when you started the diet. Do they get sick? Tired? Any info will be helpful. Thanks Laura

RE: Any info on Ketogenic Diet

Submitted by angel_lts on Tue, 2005-06-07 - 07:33

Yes I have been on it as an adult. Seizures were very low like four a month. I would not get seizure free because my brain is fully developed. I have info on my support group on the ketogenic diet in links. I also have a member that was cured from b vitamins. Check out his story in files.

Lisa

http://health.groups.yahoo.com/group/EpilepsyApproach/

Lisa

http://health.groups.yahoo.com/group/EpilepsyApproach/

RE: RE: Any info on Ketogenic Diet

Submitted by Ted_Jacqui on Wed, 2005-06-15 - 12:56

I posted earlier on this thread but forgot to check the "let me know if someone replies" box, it's the only way I can keep track of the threads.

Sorry I can't think of your name (maybe AmyQ?) how did the start to the diet go? Sorry to run, I must go and weigh Rylan's keto lunch so we can eat.

Jacqui

tedjacquirylan@gmail.com

I posted earlier on this thread but forgot to check the "let me know if someone replies" box, it's the only way I can keep track of the threads.

Sorry I can't think of your name (maybe AmyQ?) how did the start to the diet go? Sorry to run, I must go and weigh Rylan's keto lunch so we can eat.

Jacqui

tedjacquirylan@gmail.com

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