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Nocturnal seizure... what is it?!

Tue, 07/24/2007 - 22:24
Topic: Living With Epilepsy - Adults
Hi all I am new to this forum, and just stumbled across it while trying to search for an explanation of something that happened to me. So my story is... I was on holiays, so was fairly tired after a flight from Australia to New York. I fell asleep around 1:00am and my boyfriend woke up to me at 2:00am having a seizure. Apparently i looked like i was being possessed (charming, i know!). Basically it wasnt jerky movements, but i just lost control of every body movement - i wet the bed, my face muscles had gone all droopy, I couldnt talk except to slur a little bit, and I couldnt sit up. I woke up to the ambulance guys, then within 5 minutes I realised where I was and was starting to be able to speak again and by the time i was in the emergency room, within maybe 20 mins, I was fully functional again. My MRI and CT scans came back totally clear and the neurologist said that it must have been a random seizure (ie he could see no reason for it except possibly exhaustion). My family has a long history of strokes but the doctors said this wasnt a stroke. Does anyone know if this sounds like a type of epilepsy?? If anyone could give me ANY info that would be great. Anyone with a similar story etc. Thank you so much in advance!! alana

Comments

Re: Nocturnal seizure... what is it?!

Submitted by konradgill on Thu, 2008-04-17 - 08:45

currently we do not have her on any medication. The carbetrol she was on had too many side effects. Since she only has an average of 1 seizure every two months between 4:30 and 6:30 am we decided that we could monitor her and be there to assist her when she had the seizures. At the time of her diagnosis the Doc told us that there was a small risk of dieng from a seizure but that seizures in themselves if lasting 1 minute or less would not cause any lasting effects. Iv'eread recently that that view has changed and that there maybe become lasting cognitive and memory loss. Is Keppra tolerated well ? What are the side effects ..

 

Thanks

 

Konrad

 

currently we do not have her on any medication. The carbetrol she was on had too many side effects. Since she only has an average of 1 seizure every two months between 4:30 and 6:30 am we decided that we could monitor her and be there to assist her when she had the seizures. At the time of her diagnosis the Doc told us that there was a small risk of dieng from a seizure but that seizures in themselves if lasting 1 minute or less would not cause any lasting effects. Iv'eread recently that that view has changed and that there maybe become lasting cognitive and memory loss. Is Keppra tolerated well ? What are the side effects ..

 

Thanks

 

Konrad

 

Re: Nocturnal seizure... what is it?!

Submitted by konradgill on Tue, 2008-04-15 - 22:23

I found your posting after joining this forum looking for answers on nocturnel seizures. My daughter is also ten and still having nocturnel seizures one every two months. Always between 4:30 and 6:00 am. We have kept her off medication and try to manage her sleep hygene and stress management. We tried tegratol and the side effects were terrible. I'm reading now that there is some evidence that seizures can cause brain damage, however not in all cases. I'm curoius, how is your daughter and what have you learned since your post in 2007 ? We are struggling with outting her back on meds after reading the scare on brain damage .

Reagrds

I found your posting after joining this forum looking for answers on nocturnel seizures. My daughter is also ten and still having nocturnel seizures one every two months. Always between 4:30 and 6:00 am. We have kept her off medication and try to manage her sleep hygene and stress management. We tried tegratol and the side effects were terrible. I'm reading now that there is some evidence that seizures can cause brain damage, however not in all cases. I'm curoius, how is your daughter and what have you learned since your post in 2007 ? We are struggling with outting her back on meds after reading the scare on brain damage .

Reagrds

Re: Nocturnal seizure... what is it?!

Submitted by Debi on Wed, 2007-07-25 - 02:00
I forgot to comment on one other thing, it sounds like your seizure was a Partial Siezure and not a Generalized one you might look both of those up in google. It seems that there are many different types of epilepsy and syndromes and many different kinds of seizures. I'm trying to wade through the world of information to educate myself. Like you, we are watching and waiting to see if there will be another seizure, which grinds on my nerves!

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