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What do flickering/flashing lights do to you?

Sat, 05/16/2009 - 19:24

What effect do flickering or flashing lights have on you? Can you describe a bit how you feel when you encounter them and what happens to you?

Does everyone with epilepsy have a reaction to them? Is everyone photosensitive in this way or is photosensitive just one specific type, and there are others who are not bothered by what they see? 

 

Comments

Re: What do flickering/flashing lights do to you?

Submitted by bethy123 on Sat, 2009-05-16 - 22:29
I really don't find that I have a problem with them, when I was first diagnosed though my doctor told me to be aware so I don't go staring into strobe lights or anything. :) A few times when I have been in a club and they have strobe lights on and I am very close to them, I will get a sort of headache but no seizures. And I can watch japanimation just fine.

Re: What do flickering/flashing lights do to you?

Submitted by pellykate on Sat, 2009-05-16 - 23:22
Thank you! I was reading about photosensitive epilepsy since posting my question and apparently it's not common? According to the Epilepsy Foundation website, anyway. It seems most people think that strobe lights and epilepsy are married. I was wondering since it is possible that I have epilepsy, but still unconfirmed. Besides the sleep "episodes" i've had forever (described in my only other post), movies about Marvel comics make me jump and jerk and feel zaps and electric tingle surges during the high action sequences, but never cause what I've always thought of as a full-on seizure. Last night we were watching "Tropic Thunder" (hilarious) in the dark, and I got up to go to the bathroom during a scene where there was constant lightning so the whole room was flashing. It threw me off as I walked, and when I got to the bathroom and turned the light on and... sat down, my skin was tingling in places, one side of my face and my arm. Really strange. Never had a problem with strobe lights, but unexpected headlights flickering through the median fence on the Interstate one night caused a big electric shock and momentary brain-scramble. I could feel the electricity popping in my fingertips for a couple minutes afterward. I checked out some of the supposedly seizure-inducing YouTube videos, too, and none of them effected me whatsoever. Hm.

Re: What do flickering/flashing lights do to you?

Submitted by cvargas on Sun, 2009-05-17 - 02:09

hi, pelly

ya know I would love to say that I could watch all kind of movies and not care that the little cars in the airports with the litte flashing lights dont affect me ...but...well.. they do in fact I was gonna see a movie the most recent of the 007 and I couldnt cuz I started having my "epidsodes" look its different for everyone I know that for a fact but I do know that if a dr asks me to trigger a sz I know what to tell him...

right before my brain surgery they were doing some testing and they wanted to see exactly where all the sz were coming from and the question came out "do you know what triggers your sz"  hmmm I thougt should I tell them and have a gran mal or pretent I dont know .....It came out "saving private Ryan"  within seconds I was having sz after sz

look we are all different and we just gotta find out which ones are our qlich

your hand of cards have been delt now play them the best you can and WIN!!!!!

never give up!

`Christina Vargas

hi, pelly

ya know I would love to say that I could watch all kind of movies and not care that the little cars in the airports with the litte flashing lights dont affect me ...but...well.. they do in fact I was gonna see a movie the most recent of the 007 and I couldnt cuz I started having my "epidsodes" look its different for everyone I know that for a fact but I do know that if a dr asks me to trigger a sz I know what to tell him...

right before my brain surgery they were doing some testing and they wanted to see exactly where all the sz were coming from and the question came out "do you know what triggers your sz"  hmmm I thougt should I tell them and have a gran mal or pretent I dont know .....It came out "saving private Ryan"  within seconds I was having sz after sz

look we are all different and we just gotta find out which ones are our qlich

your hand of cards have been delt now play them the best you can and WIN!!!!!

never give up!

`Christina Vargas

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