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Nocturnal seizure... what is it?!
Tue, 07/24/2007 - 22:24Comments
Re: Nocturnal seizure... what is it?!
Submitted by konradgill on Tue, 2008-04-15 - 22:23
I found your posting after joining this forum looking for answers on nocturnel seizures. My daughter is also ten and still having nocturnel seizures one every two months. Always between 4:30 and 6:00 am. We have kept her off medication and try to manage her sleep hygene and stress management. We tried tegratol and the side effects were terrible. I'm reading now that there is some evidence that seizures can cause brain damage, however not in all cases. I'm curoius, how is your daughter and what have you learned since your post in 2007 ? We are struggling with outting her back on meds after reading the scare on brain damage .
Reagrds
I found your posting after joining this forum looking for answers on nocturnel seizures. My daughter is also ten and still having nocturnel seizures one every two months. Always between 4:30 and 6:00 am. We have kept her off medication and try to manage her sleep hygene and stress management. We tried tegratol and the side effects were terrible. I'm reading now that there is some evidence that seizures can cause brain damage, however not in all cases. I'm curoius, how is your daughter and what have you learned since your post in 2007 ? We are struggling with outting her back on meds after reading the scare on brain damage .
Reagrds
Re: Nocturnal seizure... what is it?!
Submitted by konradgill on Thu, 2008-04-17 - 08:45
currently we do not have her on any medication. The carbetrol she was on had too many side effects. Since she only has an average of 1 seizure every two months between 4:30 and 6:30 am we decided that we could monitor her and be there to assist her when she had the seizures. At the time of her diagnosis the Doc told us that there was a small risk of dieng from a seizure but that seizures in themselves if lasting 1 minute or less would not cause any lasting effects. Iv'eread recently that that view has changed and that there maybe become lasting cognitive and memory loss. Is Keppra tolerated well ? What are the side effects ..
Thanks
Konrad
currently we do not have her on any medication. The carbetrol she was on had too many side effects. Since she only has an average of 1 seizure every two months between 4:30 and 6:30 am we decided that we could monitor her and be there to assist her when she had the seizures. At the time of her diagnosis the Doc told us that there was a small risk of dieng from a seizure but that seizures in themselves if lasting 1 minute or less would not cause any lasting effects. Iv'eread recently that that view has changed and that there maybe become lasting cognitive and memory loss. Is Keppra tolerated well ? What are the side effects ..
Thanks
Konrad