vns therapy side effects

Well, after a writing exercise I signed in with Facebook and it was gone, but now I am officially here.  Anyway, I do not have the longevity with a VNS device that many here do have, with my insertion being just less than a month prior to this note.  In my case, I say thank the Lord.  My device, whether over ramped, faulty from the factory so to speak, wrongly lead inserted or a reason that I am unaware of,  is sending action occurrences throughout my entire body with such painful symptoms to my groin, stomach, back/chest , extreme penile stimulation etc that I have made four 'band-aid' pain cycle breaking  trips to the emergency rooms which gave the needed medicinal injections (thank the Lord), but whose doctors (but not all RNs) were clueless about a VNS device that was normally functioning, nevertheless an aberrant malfunctioning one.  Along with the painful symptoms and in line with the aforementioned members that mentioned pricking of the skin...I have a regular feeling of a sun burnish prickling over the entire body with an occasional bee-sting like discharge at a fingertip at times.  It does of course happen and is related directly to the VNS.  No one is wrongminded in any way to think it isn't.  If this entry is skewed in any manner I will admit that I feel intellectually up to the task but am finding, in retrospect, missives under the alleviating combinations of needed opiates I am currently taking/given in measure, that I have been not only verbose but guilty of jibberish sensibility at times.A final note:  found today but not yet connected with is a VNS Therapy case worker manager toll free number that answers questions about VNS therapy and will actually direct you to a different doctor that is outside the practice of the one that you currently may find less than helpful.  It is obviously not the only or main function but is the lifeline that I am looking to grab onto at present.  My prayer is out for all that are in any sufferance and of course for those in their aid.

I have had some very odd issues with my implant not sure why but it has given me a upset stomach now for months as it comes and goes its seems as maybe its due to surgery and that a lead may be pinching a nerve I have found at times i Can stop this at times if i lift a object with my left arm enough to put strain in the neck which then the nasua stops, but it comes back often and its hard to get the muscle or nerve back to the point for the upset stomach to cease I also notice it seems as the leads may be pinching my chest as i can feel the leads at times. the sensation of swiping the magnet is the worse its as someone is choking me and it feels as my lower jaw and teeth are burning as if some one is pushing a hot spike into my lower jaw for 15 seconds then it eases so i do not swipe the magnet much at all. Its been a few months since i had it adjusted and cant get ahold of my nuerologist to check this all out I have been his patient for 17 years and the last few months he doesnt call me back or reply to my emails When i saw him last he tested the leads and when he did that it felt like a hot poker going thru my jaw it was so bad i almost went into tears I told him about it , he did not seem it was anything to worry about. I had this implanted to help with whats called intractable headpains , complicated migrains and cluster headaches which have brought on untypical seizure which are produced by head pain i have suffered for 20 + years. The head pains I describe are pains that are everyday but because of the medications i am on the pain is still everyday but only last a day now instead of day or weeks where at times i was bed ridden from the massive pain in the head. I will try anything the medical profession to come up with to stop these head pains It does depress me as to wake and go to bed with a headache as it never fails I havent had one day in over 20 years where i havent had a headache, but at least the severity is not as it once was, but this was the case when they put me on a cocktail of many medications which makes my life more normal then it has been in years I raised 5 children and a grandaughter with this condition I attened college to get my associates degree but that was a slow process since at the time i was going thru doctors misdiagnosising me and treated me for everything but what i had. one doctor had me beliveing I was crazy and the pain was from me thinking to much about the pain but one knows when a migrain comes on how useless the migrain makes you then a cluster headache on top of the migrain and the stress headaches make a presesnce. the day after recovering from a masive head pain my body is wore out as if was was hit by a car