hi, my son is ten and has had bre for two years, pretty well controlled on zonegran. the past two nights, he's started sleeping with his eyes open and has seemed kind of clammy. could this be related to his epilepsy? has anyone...
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TAKE CONTROL TODAY slapfo... New - 10 year old w/BRE started sleeping with eyes open--anyone know if this could be related?
Created by slapfo...at08/19/2011 - 5:26pm|5 Views hi, my son is ten and has had bre for two years, pretty well controlled on zonegran. the past two nights, he's started sleeping with his eyes open and has seemed kind of clammy. could this be related to his epilepsy? has anyone...
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 Narey New - 9 year old daughter dx'd with Benign Rolandic Epilepsy
Created by Nareyat06/29/2011 - 9:48am|15 Views|2 Comments
I've been trying to peruse some of the posts on the topic of Benign Rolandic Epilepsy. It seems so many parents write the very same that I want to... this is upsetting, new, confusing. Medicate or not?
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bchjan65 New - BENIGN ROLANDIC EPILEPSY
Created by bchjan65at11/09/2010 - 7:40am|41 Views|3 Comments
Just wanted to share my story, my daughter was diagnosed with Benign Rolandic Epilepsy almost two years ago. She has had probably 12 seizures since then, all in her bed all at night after falling asleep. We decided...
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brenda-sw New - BRE and starting full day school???
Created by brenda-swat06/04/2011 - 9:11am|23 Views|3 Comments
My almost 5 yr old is supposed to be starting Kindergarten in Sept.
Full day, 7 hrs, 5 days a week. She has BRE and is still napping 1-2
hrs mid day. We live in NJ and the cut off for K is 10/1, A LOT of
people hold back...
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tcourson New - BRE chose not to medicate, is this a wise choice?
Created by tcoursonat12/22/2010 - 12:53pm|34 Views|2 Comments My 6 yr old son was diagnosed with BRE in Aug 2010, we saw the neuro and he gave us the option to medicate or not. He told us that BRE does not cause any damage to the brain and that if he were in our position he would not medicate...
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shaysmom New - BRE- Did any other parents have issues finding the right amount and type of meds, and if so how long did it take?
Created by shaysmomat02/16/2010 - 3:33pm|13 Views My daughter was diagnosed with BRE in Jan of '08. The first year we tried to keep her off meds, but about a year in she had 12 grand mals in 7 days and we knew we didn't have a choice for her. The medicine seemed to have helped, and...
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calueck New - BRE-how do you know they have outgrown the seizures?
Created by calueckat11/03/2011 - 3:22pm|17 Views|3 Comments
Hi -
I have an 8 year old daughter who was diagnosed with Benign Rolandic Epilepsy in January 2009. Its almost been a year since she has had a seizure.
Does that possibly mean she has outgrown the diagnosis? I know...
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echo New - Children with Benign Rolandic Epilepsy (BRE) and problems with learning and/or attention
Created by echoat10/06/2011 - 9:26am|97 Views|11 Comments I am interested in sharing information and stories with other parents whose children have (or had BRE) and have experienced learning or attention problems at school.
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CD0723 New - Confused on whether I should start my son on meds for his BRE
Created by CD0723at04/27/2010 - 7:26pm|9 Views My son was diagnosed with BRE at the age of 8. It first started with him having the focal seizures on one side of his face. He had them periodically about every 6-8 months. At the age of 11 he had a full blown seizure in bed. ...
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 wyboemail New - Good outcomes after diagnosed with BRE and off meds
Created by wyboemailat12/15/2010 - 12:53pm|7 Views
Would like feedback from patients or family members of someone that was diagnosed with BRE and has been seizure free while being off meds for an extended period of time.
My son had his last seizure on January 16th, 2009. Has...
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