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INFORMATION * EMPOWERMENT * HOPE * COMMUNITY

A Unique One-Day Conference Dedicated to People Living with Seizures, Their Loved Ones and Epilepsy Advocates

Saturday, May 16, 2015

Where: Turnberry Isle Miami, 19999 West Country Club Drive, Aventura, FL
Time: Registration: 8:00 to 8:30 am
Sessions, Breaks and Lunch (included): 8:30 - 4:30 pm
Community Social: 4:30 to 5:00 pm

Goals of Epilepsy Pipeline Community Conference

  • Information: Share challenges of living with epilepsy and learn about new approaches and therapies.
  • Empowerment: Be an active member of your care team and work toward no seizures!
  • Hope: Understand the importance of research and how you can help.
  • Community: Join friends, families, and advocates for a day of learning, support, and networking.
  • Celebrate: Epilepsy Foundation Debut of "Last Pyramid" - an award-winning documentary by the Foundation and Executive Producer Greg Grunberg!

Leading Epilepsy Experts and Families Will Discuss Updates on the Latest Topics Including:

  • The Rare Epilepsies
  • New Seizure Medications, Rescue Therapies, Medical Marijuana
  • When Seizures Don't Respond to Medicines, New Surgical Approaches and Devices
  • The Epilepsy Pipeline and How You Can Help
  • Thinking, Behavior, and Mood
  • Using Technology for Epilepsy Self-Management
  • Family and Relationships

Registration and Cost

DRAFT PROGRAM

8:00-8:30 Registration

8:30-8:40 Welcome and Overview

  • Patty Osborne Shafer
  • Jonathan C. Anderson, Chair, Epilepsy Foundation of Florida

8:40-9:10 Point of View - Diversity of Epilepsy

  • Philip Gattone, President, Epilepsy Foundation
  • Daniel Fisher
  • Marisol Valdes

9:10-9:30 Challenges of Epilepsy

  • Steven C. Schachter

9:30-9:50 The Rare Epilepsies - what are they and why are they important?

  • Jacqueline French

9:50-10:05 The Epilepsy Pipeline 2014

  • Warren Lammert, Chair, Epilepsy Foundation

10:05-10:20 - BREAK

10:20-10:50 Chronic Seizure Medications and Updates on Generics

  • Michael D. Privitera

10:50-11:10 Rescue Therapies

  • Nancy Santilli

11:10-11:30 Medical Marijuana (Cannabis)

  • Ian Miller

11:30-12:00 Panel QA

  • Moderator: Janice Buelow
    Panelists: Michael Privitera, Nancy Santilli, Ian Miller, Jacel Delgadillo, Marisol Valdes

12:00-12:15 Epilepsy.com and the Role of Social Media

  • Kenneth Lowenberg

12:15-1:15 LUNCH - Network tables, Exhibits

Track 1 - New approaches to treating uncontrolled epilepsy

1:15 – 1:35 Surgical Treatment in Epilepsy: The Present

  • Badih Adada

1:35--2:05 Pediatric Epilepsy Surgery – Six New Things

  • Michael M. Duchowny

2:05-2:25 Devices for Epilepsy- What's New?

  • Patricia Osborne Shafer

2:25-2:30 A Personal Perspective

  • Christopher Flaig

Track 2 - Living with epilepsy

1:15-1:40 Thinking, behavior and mood

  • Andres M. Kanner

1:40-2:05 Self-Management and Safety

  • Patricia Dean

2:05-2:30 Family and relationships - it's more than just the seizures

  • Juanita Edwards
  • Jon Scheinman

Main Session

2:30-3:00 Combined Panel Q and A

  • Moderator: Andres M. Kanner, MD
    Panelists: Badih Adada, Michael Duchowny, Patricia O. Shafer, Luis Fong, Christopher Flaig

3:00-3:15 - BREAK

Main Session

3:15-3:30 Point of View

  • Steven C. Schachter
  • Patricia Barnes

3:30-4:00 Epilepsy Foundation Debut of "Last Pyramid", an award-winning documentary by the Foundation and Executive Producer Greg Grunberg!

This Film Was Made Possible With A Grant Provided By UCB.

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4:00-4:20 Panel Discussion

  • Moderator: Samantha Macher
    Panelists: Phil Gattone, David Schachter, Trish Barnes, Karen Basha Egozi, Patty Fritz

4:20-4:30 Wrap up

4:30-5:00 - Community Networking and Social Reception

 

With Thanks to Our Sponsors

Top sponsor: $15,000

UCB Logo tag

$10,000

Sunovion Pharmaceutics Inc.

$6500

Danny Did Foundation

$5000

Mallinckrodt Pharmaceuticals

$2500

Baptist Hospital of Miami
Cleveland Clinic
Cyberonics
Insys Therapeutics
Lundbeck
Nicklaus Children's Hospital Brain Institute
Supernus Pharmaceuticals

$1000

Josh Provides
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SAMi

Complementary (Supports the Epilepsy Foundation though DIY Programs)

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