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2012 Epilepsy Pipeline Update Conference - Family and Friends

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With Thanks to Our Sponsors

Patron

Patrons: Cyberonics, Danny Did, Pfizer, Sunovion, Upsher-Smith

Supporter

Supporters: Lundbeck, Medtronic, Supernus

Associate

Associates: Openconcept, UCB

Mission Advocate

Advocate: Neurovista

Day 3 - Saturday February 4, 2012 - ETP Family Day

ETP's Family Day presented the Epilepsy Pipeline, emerging research and new ways of thinking about epilepsy, new treatments and directions in care, using technology to manage your life with epilepsy and help others!

Objectives:

  1. Appreciate the importance and challenges of living with epilepsy and developing new therapies and approaches.
  2. Learn about new ways of looking at epilepsy and the brain.
  3. Empower yourself to increase awareness of epilepsy and its consequences, how the Epilepsy Pipeline can help, and how you can make a difference.

Program:

8:00-9:00 Registration and Exhibits  
9:00-9:10 Welcome and Overview  
9:10-9:40 The Reality of Epilepsy: State of the Art Steven C. Schachter MD,
Harvard Medical School, Boston MA
9:40-10:20

Panel: New Ways of Understanding the Brain and Epilepsy

  • Epilepsy as a Spectrum Disorder -Frances E. Jensen MD, Children’s Hospital Boston, Boston MA
  • What Do Our Genes Tell Us? -Daniel H. Lowenstein MD, University of California, Dept of Neurology, San Francisco CA
10:20-10:35 Challenges Through Our Eyes Linda and Eric Warner
Minneapolis, MN
Amber Cooksey		  
10:35-10:50 Break, Exhibits  
10:50-11:30 Epilepsy Medications and Alternative Therapies on the Horizon Jacqueline French MD,
New York University, New York, NY
Steven C. Schachter MD
Harvard Medical School, Boston, MA		  
11:30 - 12:15
Panel Discussion: SUDEP – What do we know and what we need to talk about
  • Moderator: Joseph I. Sirven, MD, Mayo Clinic Arizona
  • Panelists: Jeffrey Buchhalter MD, PhD, Phoenix Children’s Hospital, Phoenix AZ
  • Tom Stanton, Danny Did Foundation
  • Tamzin Jeffs, SUDEP Aware
  • Lisa Lindahl, Entrepeneur
  • John Barry, MD, Stanford University, San Francisco CA
12:15-1:00 Box Lunch and Exhibits  
1:00-1:40 Devices and Surgery - Insights on Old and New Approaches Robert Fisher MD, PhD,
Stanford University, San Francisco CA
Samantha Chartrau, Grafton WI, Mentor, epilepsy.com
1:40-2:20 Dietary Therapies and Wellness Elizabeth Thiele MD, PhD,
Massachusetts General Hospital, Boston MA;
Heidi Pask, Stoneboro PA, Mentor, epilepsy.com
2:20-3:10

Reactor Panel: Insights from people with epilepsy

  • Moderator: Mimi Callanan RN, MSN, CNS, Stanford University, San Francisco, CA
  • Panelists: Dayna Breman, Los Angeles CA, Mentor, epilepsy.com
  • D. Andrew Neff, Epilepsy Foundation of Northern California
  • Amber Cooksey
  • Chris Wilson, Albuquerque NM, Mentor, epilepsy.com
3:10-3:50 Tools you can use in managing epilepsy, the role of social networking Patricia O. Shafer RN, MN, Beth Israel Deaconess Medical Center, Boston MA
Samantha Chartrau, Grafton WI, Mentor, epilepsy.com
Patricia Barnes, New Sharon ME, Kevin's Pyramids
3:50-4:00 Questions, Closing Remarks
4:00-5:00 Reception  
None