|
|
If you (or your loved one) have had a vagus nerve stimulator implanted, what happened after it?
(Note: You must log in or register to participate in this poll.)
Here's a typical story: "We heard a thud from Timmy's room one night. We rushed in and saw him on the floor, having a whole-body seizure. The next day, the pediatrician asked if Timmy had ever had any tingling or jerking movements in his face or body. We were shocked when Timmy said yes, sometimes his tongue would tingle or his cheek would jerk for a little while. The doctor did an EEG and said it was 'rolandic epilepsy,' and said that Timmy didn't have to be treated. That's what we wanted to hear. He had one other, milder seizure a few months later. He ran into our room and woke us up. He couldn't talk because the side of his mouth was twitching and he was drooling. Fortunately, it was over quickly. It's been 5 years now, and except for a few tingles and twitches, Timmy has been doing great."
A typical attack involves twitching, numbness, or tingling of the child's face or tongue (a partial seizure), which often interferes with speech and may cause drooling. These seizures last no more than 2 minutes and the child remains fully conscious. Sometimes the child also may have tonic-clonic seizures, usually during sleep. The seizures are usually infrequent, but they may occur in widely spaced clusters.
This syndrome represents about 15% of all epilepsies in children. The seizures begin at an average age of about 6 to 8 years (range 3-13) and are a bit more likely to affect boys. The children generally have normal intelligence, which is not affected by the seizures. The syndrome is more common in children who have close relatives with epilepsy.
Benign rolandic epilepsy (BRE) is named after the rolandic area of the brain, which controls movement in the affected part of the face. It is also called by other names, especially benign childhood epilepsy with centrotemporal spikes (BCECTS). That name refers to certain patterns ("spikes") seen on the child's EEG, which help to identify the syndrome. Other tests, such as the neurologic examination and MRI (if performed), are normal. While the condition is considered benign -- since most children with the condition outgrow the seizures -- during the period of time when the disorder is active, some children will have learning difficulties and behavioral problems. The problems typically disappear once the seizures stop and the EEG reverts to normal.
Because the seizures may be infrequent and usually occur at night, many children do not take any seizure medicines for BRE. Medication may be prescribed if a child has daytime seizures, a learning disorder, a mild mental handicap, or frequent seizures during sleep. The seizures usually can be controlled by any of the common seizure medicines. Neurontin (gabapentin), Trileptal (oxcarbazepine), Tegretol or Carbatrol (carbamazepine) are most often prescribed in the United States.
In almost every case, the seizures stop on their own by age 15.
Topic Editor: Gregory L. Holmes, M.D.
Last Reviewed: 10/21/06
This content is user-generated. Content is not monitored nor consistently reviewed by the epilepsy.com Editorial Board. Epilepsy.com therefore cannot guarantee the accuracy of any content edited with the Wiki sections. While epilepsy.com, the Epilepsy Therapy Project, and its partners encourage visitor interaction and publishing within these sections, users should use caution when exploring content, especially as it pertains to health concerns. No content on epilepsy.com is intended to replace the care of a doctor. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy, nor does this Wiki content constitute a recommendation for any diagnosis or treatment options.
No members have contributed to this topic yet: Benign Rolandic Epilepsy. Be the first!
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Epilepsy.com Members: If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Edit this Wiki" button at the top of this page. Put in your own content about this topic in the Main Body text area and submit the page. Or, learn more about Wikis before you begin.
Register Today: If you are not an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member.
| Title | Posted | |
|---|---|---|
| Sex drive and seizure medications | May 16, 2008 | |
| dfriedman | ||
| life | May 16, 2008 | |
| kevinmo99 | ||
| son newly diagnosed with Absence Seizures | May 16, 2008 | |
| shu | ||
| Controlling absence seizures | May 16, 2008 | |
| shu | ||
| Developmentally Delayed 1 yr. old | May 16, 2008 | |
| kristy_08 | ||
| My parents dont care...I feel soooo alone! | May 16, 2008 | |
| blondestar25 | ||
| Epilepsy and marijuana | May 16, 2008 | |
| cjad234 | ||
| Absence Seizure in toddler, need more info! | May 16, 2008 | |
| KellaC32 | ||
| New to site and living with Epilepsy | May 16, 2008 | |
| asking79 | ||
| Binaural Beats and Epilepsy | May 16, 2008 | |
| Jamie-vette | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| Over 40 Different Types Of Seizures....... | 21,808 | |
| spiz | ||
| my.epilepsy.com Updates | 20,169 | |
| epi_help | ||
| topamax and weight loss | 18,721 | |
| alexia mom | ||
| kepra | 18,468 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,297 | |
| pdl1 | ||
| Epilepsy and marijuana | 14,075 | |
| cjad234 | ||
| Sexual Side Effects | 12,254 | |
| George R | ||
| How exactly do aura's feel | 11,992 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 10,952 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Part 2 | 9,752 | |
| spiz | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Long Day | May 16, 2008 | |
| kroiz | ||
| DOES IT MATTER IF I BLOG OR NOT? IT DOESN'T CHANGE ANYTHING. I WISH I COULD CRY. | May 16, 2008 | |
| ROCKNROLL | ||
| I need eye candy and explosions! | May 16, 2008 | |
| stephsobota | ||
| WooHoo! | May 16, 2008 | |
| d00r | ||
| Im not alone | May 16, 2008 | |
| jjogden | ||
| interictal dysphoric disorder | May 16, 2008 | |
| cameo | ||
| Angry with the neuro's office and frustrated by the school situation | May 16, 2008 | |
| Gina Marie | ||
| HAPPY MOTHER'S DAY TO ALL THOSE SPECIAL MOM'S | May 15, 2008 | |
| scratch | ||
| I've Lost My Mind | May 15, 2008 | |
| crashllama | ||
| Looking for answers | May 15, 2008 | |
| ivyrayne | ||
| View all Blogs | ||
| Title | Comments | |
|---|---|---|
| This is my own blog...how cool is that | 159 | |
| Niko | 49 | |
| yannie44 | ||
| Mood at the Moment | 33 | |
| spiz | ||
| In college and trying to cope | 30 | |
| tuckerviolinist | ||
| New pictures of Grandbaby Princess Sarah | 28 | |
| txrhb1 | ||
| battlt -becareful what you wish for .... it might come true? | 27 | |
| battlt | ||
| Not In A Good Mood! | 27 | |
| spiz | ||
| Hello All New Here | 26 | |
| KyliesMom | ||
| Epilepsy and anti depressants | 26 | |
| cameo | ||
| EPILEPSY, NON EPILECTIC SEIZURES, HORMORNES, NOT HORMONES | 24 | |
| ROCKNROLL | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Seizures + Weight Loss Surgery | May 15, 2008 | |
| meltingmama | ||
| Epilepsy Innovation Summit May 2008 | May 13, 2008 | |
| warren7 | ||
| Northern Virgina Support Group | May 11, 2008 | |
| Bery | ||
| Epi-teens | May 4, 2008 | |
| Epi-Teen | ||
| FACES Pediatric Subcommittee | May 1, 2008 | |
| Cindy Whiteside Hammerquist | ||
| living with epilepsy and ASD....autistic spectrum disorder | Apr 28, 2008 | |
| sophia_hill | ||
| Pacific NW USA | Apr 21, 2008 | |
| middleman | ||
| Mormons Living With Epilepsy | Apr 13, 2008 | |
| mormongirl | ||
| Temporal Lobe Epilepsy | Apr 13, 2008 | |
| katfaerie | ||
| Women and epilepsy | Apr 10, 2008 | |
| PurpleCristal85 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Ms. | May 16, 2008 | |
| sueanne | ||
| shilpa | May 16, 2008 | |
| shilpa | ||
| First seizure at age 25 | May 15, 2008 | |
| suziereno | ||
| its hared but then i found this | May 15, 2008 | |
| dan2work | ||
| Nobody Understands | May 15, 2008 | |
| tmpino76 | ||
| Depakote and Children | May 14, 2008 | |
| twin12 | ||
| what goes around comes around | May 14, 2008 | |
| kelly28 | ||
| Shari Story | May 13, 2008 | |
| sharebear03 | ||
| susu | May 13, 2008 | |
| susu | ||
| Ayden's Story | May 13, 2008 | |
| aydensvoice | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| no comment Aetna rejects epileptics for insurance now! | 440 | |
| wenko | ||
| my story | 423 | |
| snoby | ||
| Kelly's Life With Epilepsy | 360 | |
| kjcanada1979 | ||
| Always Have On Clean Underwear | 347 | |
| crashllama | ||
| What My Seizures Are Like...... | 331 | |
| javaman | ||
| my brain has died a thousand deaths........... | 309 | |
| banffgirl | ||
| Jessica Roiz | 291 | |
| kroiz | ||
| How I found out I hade seizures | 271 | |
| HilaryWeinberg | ||
| Crystal's story | 267 | |
| Crystal11 | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 267 | |
| karalyeva | ||
| View all Stories | ||
