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Pain With Complex Partial Seizures

Mon, 04/27/2015 - 16:26

My 10 year old daughter was recently diagnosed with Complex Partial Seizures. For the last year she was have "anxiety" attacks at odd random times. She also has mild ADHD and I thought maybe this was just a side affect of her medication. In Feburary she had a seizure although I didn't know it. It only lasted maybe 15 seconds. She rubbed her knee on her cheek as was saying stuff that didn't make since. After she had no idea what had happend. However, she is my dramatic girl and has been known to fake and illness or to get out of school. After the incident she was totally fine, but a week later she had another seizure as school was getting out. We went to the emergency room that day.

After a few weeks of waiting and seizures seeming to occure almost everyday we got into Stanford Medical Center. Her EEG came back abnormal and she was diagnosed with complex partial seizures. She has an aura which is her anxiety attacks although it might be fair to say they feel more like terror attacks to her. The aura is the least favorite part of the seizure to her and the only part she can remember. She is on Kepra and the seizures are reduced a little bit. She is averaging about one or two seizures a week instead of every day. 

My question has to do with pain though. After a seizure, although not always, she complains of pain. The pain can be in her legs. Sometimes so severe she is screaming and crying and no one can touch them. Occasionally it is horriable headaches. She had a seizure yesterday and by last night her shoulder and right side of her back is so sore she could barley sleep. She doesn't have clonic or tonic seizures at all. There is no jerking that I can see. She doesn't even feel particularly stiff if I am holding her during the seizure. I end up holding her alot becuase she is so scared during the aura. I can't find information on pain and CPS anywhere. Does anyone else have experience with this? 

Comments

The auro is a seizure in

Submitted by Anonymous on Mon, 2015-04-27 - 22:57
The auro is a seizure in itself,If you read about the different types of seizures to find out what happens then you are reading the basic things that can happen in them. That does not mean she couldn't be having something else happen which might not be listed. I was diagnosed before they came up with types of seizures. So I am not sure all hte different thigs that are in some types of seizures.Your daughter will be tired because in a seizure there are electrical impulses going off wrong in her brain (the abnormalities) Those electrical impulses going off wrong drain a lot of energy. SO even if she didn't jerk or have a spasm or convulsion her muscles got a heavy work out.. If they were in a convulsion then don't try holding that person down. Nove the things away. My step father made the mistake for grabbing my wrist and holdingit down so I wouldn't hit the coffee table. I ended up tossing him against the wall so the next time he moved the coffee table. a kid 4'8" weighing 85 lbs tosses a 6'3" marine.Amy Jo tell you that the abnormalities in the EEG can and will show where in her brain the seizures start. A person can have more then 1 type of seizure. I know been there done that.. Absence seizures, focal seizures, simple partial seizures. I have had focal seizures that generalized (went into a convulsion) and I even had a grand mal (tonic clonic) The seizures I have today are nothig like those I had years ago. My seizures today last a few seconds and most people would know nothing about it even if I was next to them and was talking.  Meds today are deffinately better then the ones I took 50+ years ago. I know what it was like being kinda druged up and have offered to be in drug studied so mewer meds can be worked on and approved. I do hope this helps and she gets th assistance she needs Joe

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