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MRI for 4.5 yr old in 2 weeks to detect....
Thu, 07/12/2007 - 18:58Topic: Parents & Caregivers
She is having partial seizures that quickly move to general seizures, possibly 1000 a day! She has partial and general seizures from 1-30 seconds each. The MRI is to try to pin point where the partial are coming from in her frontal lobe. If they can find it, and it's in a good spot for removal, they might recommend removal surgery (I can't even fathom going through this).
I don't know what I am asking for. I'm overwhelmed! Experiences, thoughts, support.....
She's on Zonegran.
Thanks!
Susan
Comments
Re: Re: MRI for 4.5 yr old in 2 weeks to detect....
Submitted by sugarsue on Sat, 2007-07-14 - 07:00
Thank you very much for you post and support. It is so good to know I am not alone but it's too bad that anyone has to deal with it at all.
s
Re: MRI for 4.5 yr old in 2 weeks to detect....
Submitted by littlebug on Fri, 2007-07-13 - 17:58
I am so sorry you and your daughter are having such a rough time.I hope you get some answers when she has her eeg. Hang in there.My daughter was two when she started having seizures.She is six now. I have not had to deal with it to the degree that you are but I do know how overwhelming sometimes that it can feel.I didnt know about this site until we had been at this for almost three years.It was so hard and sometimes I felt all alone in this.I have great friends and family but know one that could truely understand my fears and frustration in dealing with this.My thoughts are with you.