Looking for Support of Other Caregivers

Hello, I am new to the forums. Hoping I can find a support group for caregivers. My wife has had undiagnosed epilepsy since head trauma sustained when she was in high school. Let me start by saying I have always known her the way she is, and know nothing different. She is the woman I fell in love with, and the amazing mother to our daughter. Since being diagnosed with epilepsy last year, it has been an emotional roller coaster, with varying degrees of mood swings, ranging from anger, to withdrawal, to depression, for both of us. She was courageous enough to open up about it to the people we know, and since we have noticed friends suddenly becoming too busy to do things with us. It affects not only my wife, and I, but our daughter as well. Since being diagnosed, which by itself was a miracle, she has been put on generic Keppra. We spent over a decade thinking she had MS, so in some ways we had to adjust our mentality of what this disease brings with it. Keppra has lead to so many bad side effects, without relief. She has had upset stomachs, mood swings, exhaustion, and what is more troubling, is many breakthrough seizures, daily. Right now she is averaging at least a few a day. When talking to the neurologist, they are hesitant to put her on anything else right now because Keppra doesn't go in to the blood stream, and is the safest. She has kidney stones periodically, and with kidney problems being one of the things to review with other medications, they want to hold off on trying other medications. She is a very prideful person, and she keeps wanting to stick with Keppra, and they keep routinely upping her dosage, with no help. When trying to talk to her about it, she says there are no other drugs that she can take. I think that is the depression talking, but besides calling up the doctor personally, I don't feel I am getting through to her. Being a care giver is hard. I don't have a relationship with my family, and there isn't anyone who can even start to comprehend what I am going through. I can't talk with my wife about it, because she has enough on her plate, and added stress continues to trigger more daily seizures. I try to keep it together, but constantly find my mind wandering, and feeling like I continually am letting her down. Are there any other caregivers out there that can give advice? Any recommendations on how I can address the medication? Does anyone else have a loved one with many breakthrough seizures daily? Thank you in advance.