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intro
Sat, 11/25/2006 - 03:38Topic: Parents & Caregivers
I thought I'd introduce ourselves...I'm Kristy, mom to Matthew. Matt was born with a very severe form of Epilepsy. He's had so many seizures throughout his 4 years, that they have literally destroyed his brain. He's the love of my life though! I couldn't ask for a better child--he doesn't get into things and doesn't talk back. haha
Comments
Re: intro
Submitted by carsonsmom on Thu, 2006-11-30 - 10:16
Welcome Kristy and Matthew.We just wanted to introduce ourselves to you. I am Karen mom to Carson .Carson is also 4 and was also born with a severe form of epilepsy although it didn't develope into seizures until he was 18 months old .He was formaly diagnosed with epilepsy at 22 months and since then it's been a rocky roller coaster as I am sure you must know all about . Carsons's temporal lobes never fully developed during gestation which has left him with many uncontroled seizerus.Currently we are on a combination of lemectal / valporic acid and are down to 1-2 seizures a day now .
Re: intro
Submitted by Essie on Tue, 2006-11-28 - 04:04
Hello Kristy! Welcome to the site! I'm so sorry your child has had such severe seizures. Just yesterday night me and my husband discussed what damage seizures could do to the brain. We despise giving our child meds, but stories like your Matt's make us realise it's for the better. At least you've kept your sense of humour! Is Matt your only child? Because you seem to know what mischieve otherwise healthy kids can get into! There isn't a mom of a healthy child in the world who didn't for just one second wish her child would sit still and be quiet. But it breaks your heart to learn of children with Matt's problems. I'm glad that he has a mom that loves him so much. Good luck, and take care, Essie (mom to Nian, 5 -with E, and Meonie, 3)