Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Information needed for Lennox -Gastaut Syndrome
Fri, 07/20/2007 - 10:11Topic: Parents & Caregivers
Hi Everyone,
Iam a parent of a child with Lennox-Gastaut Syndrome.I have not met anyone with this condition. I would like to get some advice regarding this condition.
I have an 8 year old daughter with refractory epilepsy.She has seizures from day one of her birth.She has undergone battery of tests everything came out normal.However her is eeg is abnormal. She is developmentally delayed.She started walking when she was 2 years old.We have seen over the years myoclonic seizures,also complex partial seizures.She can say only 2-3 words at this age .She communicates by gestures.Her receptive language is 3-4 years level.
She is heavily medicated.She takes 3 medications.
One of her neurologist diagnosed as she has Lennox Gastaut Syndrome.
We have taken opinion from another neuro who denied this.
Thanks a lot
SVA