Four year old with seizures

so that sounds like you got vague info but you might not have been able to process everything they told you, it's a lot to process in the beginning. are you working with pediatric epilepsy specialists , epileptologist vs generic neurologist?how much do you know about the kinds of seizures your 4yo is having? if they 'know' it's genetic then did they give you a more specific diagnosis because there are a lot of epilepsies and genetic epilepsies include easy and hard to control and they range from might grow out of to lifelong epilepsies. did anyone mention emergency medication (diastat, intranasal midazolam, buccal midazolam or, if there's warning, then a quick acting oral med)? generally one starts epilepsy medication at a low dose and increases it until seizures are controlled or dose is just below some intolerable level or high dose they don't want to go over.

My daughter is 5 and was diagnosed at 4. All her tests were negative also. I will not sit down and do nothing while waiting for these seizures, which only happen at night for my daughter. I have cut out all processed sugars, food coloring, switched to whole foods and natural body care, and saw great improvement in my daughter. I suspect she has multiple intolerances that contribute to her seizures. her eczema went away after we cut out all the processed foods and her sensitivity to multiple things (such as crying when her hair is brushed) has gone away. I am currently doing an elimination diet. I cut out all the common allergen food groups, and am introducing them one at a time, to see if they have ill effects. She had no seizures during he elimination process, but had them on two of the days that I reintroduced food groups. If you want to talk about this, let me know. This could even possibly help with your wife's seizures. I know epilepsy is not curable, but if I can help my daughter have seizures less while staying healthy, why not-Grace

I'm so sorry, but the truth is what they told you is unfortunately the truth.Trial and error is the only way to see what medication or convo work best. Epileosy is not like an ear infection where you get a set dosage of an antibiotic and then you are cured. There is no cure for epilepsy and no standard treatment. Every case is completely different. What works for some may not work for the next AND only a few anticonvulsants are approved for children thus limiting treatment options. Dosage and treatment adjustments are common at the beginning.Another truth, and I know this may shock you, seizures are really not life threatening events and don't require trips to the hospital every day. ERs can't help you because they have no clue about neurology. They will shrug their shoulders and tell you to follow up with your pediatrician or consult a neurologist. Unless the seizure doesn't stop after a few minutes or you are hurt due to the fall, then ambulance rides are unwarranted. I know, I know. As you go through the motions, know what is normal for your child and consult a pediatric neurologist that can tell you what to do and when to seek emergency responders,.... until then you are really on your own waiting until you finally get to consult a neurologist, which can take months!! Or brace until the next seizure? Live on the edge? Epilepsy is an extremely frustrating condition to have because there are more questions than there are answers, and even today neurology us a vastly undiscovered field. The money seem to be in cancer,so the research money goes there, very little for Epileosy in comparison, and there are not a lot of neurologists either, it is a very tough field. Being patient and accepting is all that can be done. Make sure your child have regular bedtimes and plenty of rest. DHA capsules and vitamins, and a fatty diet are helpful in children.