29 month old with some sort of episode. Please help!

Hello, everyone!  

I'm new here.  Father of 3 beautiful children.  A 12 year old little man, a 29 month old baby boy, and a 2 month old baby girl. 

Two Sundays ago at around 10pm I entered the kitchen for some raspberries.  I noticed my baby boy followed me in.  I offered him some raspberries, and noticed his eyes are looking straight up.  Almost rolling back.  He stood there.  Taking small steps side to side.  I called out to him, but he was not responsive.  Even when I picked him up and laid him down on the living room floor.  I called 911 immediately.

As he laid there, eyes always open and looking up, he extended his right arm outwards as if trying to touch me or reaching.  At another point he moved his leg in the same fashion.  At another point he blinked quickly, and over and over.  

This whole thing lasted a long time.  I mean, it took the ambulence 9 minutes to arrive.  Even then it continued.  In the ambulence they decided to give him oxygen, even though he was breathing the entire time and wasn't blue or anything.  When they did give him oxygen he stiffened up some, and that's when I saw some minor convulsions.  They kept saying it was a seizure but the onset definitely wasn't a grand mal seizure.  

The entire ordeal lasted anywhere between 18-22 minutes.  Maybe more.  

In the hospital they put an IV, and EKG but my little boy fought them all the way, eyes closed the whole time, but fighting.  He wasn't happy.  Fought during the CT Scan too.  But then that's when he finally became tired, and the traditional sleepiness following a seizure occured.  He then slept all night until the morning time when he was back to normal.

CT and Bloodwork was normal.  His sugar was fine, even though he had little to eat that day and didn't take his nap.  My wife is convinced that that is what lead to all this.

He also had a sleep deprived EEG.  We are awaiting the results of that test.  But they also did the strobe light test, and he was fine.  Couldn't do the hyperventilating test cause he's only 2 and a half years old.

We are awaiting appointment for MRI.  

A concern for us is that it seemed as if he was going to talk a year ago, he said, "Hewwo" and his name.  And then all of a sudden stopped.  So, even though he had a small vocabulary that he only used like twice, and then lost it... we are still concerned.  But for LKSyndrome, I hear that the speech regression follows the seizures, not the other way around.

When he gets frustrated he hits his head on the floor.  His pediatrician says that many kids do that.  And that unless he passes out or his eyes start going bonkers, we shouldn't be concerned.  But I must say this little guy has taken a lot of hits to the head.  Some his own doing like hitting himself on the floor and others by falling off of places.  As a matter of fact, he did hit his head, multiple times, on the floor 2 hours prior to his seizure.  This is also part of the reason he doesn't talk.  I know we're supposed to wait when he points at something he wants, and try and make him say it.  But we're so afraid he's going to hit his head that we just give him what he wants immediately.

Speech aside, he isn't delayed in any other way.  

What kind of seizure do you guys think this is?

A part of me thinks complex partial but I heard people who suffer from those do so at least once a day.  He only had one ever, and that was a week and a half ago with no recurrence.  Can I rule out CPS?

What are the chances this was a one time fluke thing?

Is the total time of the seizure a big concern?

Neither my wife or I have a family history of epilepsy, what could this be?

Is there a chance if he gets more that he'll outgrow them?

What is the expected prognosis based on what I've said?

We are obviously working with doctors but cannot wait for answers on this issue.  We're reaching out to you guys so maybe we can know what to expect.

Thank you!