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2-year old with tonic-clonic and clonic

Wed, 08/05/2015 - 11:21

My two-year-old son had his first unprovoked tonic-clonic seizure in April, then he had a febrile (clonic) in June, and another unprovoked clonic just a few days ago. We made an appointment with a neurologist, and we know that he will most likely recommend Keppra (he suggested that last time). We do like this neurologist., but we are very nervous about medication. Of course, we are even more nervous about our son experiencing more seizures.

I would appreciate suggestions on what types of tests to ask the doctor to do. They did a CAT scan, MRI, sleep-deprived EEG in May, everything normal. I will ask for genetic testing, but I am not sure that they would do it at this stage.

Are there any blood tests that can be helpful? Or any tests besides what we have done?

Are there any parents out there whose children started having tonic-clonic/clonic seizures out of the blue? Do they progress? I am very concerned. I cannot find much about tonic-clonic seizures in young children.

My son has food allergies, but he eats a healthy diet. He has also been on Miralax for almost a year. I have just read about seizures as a possible side-effect of Miralax, and we are now trying to wean him off.

Thank you and wishing you all good health.

 

Comments

Being nervous about

Submitted by Anonymous on Thu, 2015-08-06 - 15:01
Being nervous about medicatins is normal. But understand that the longer you wait to treat him the more more frequent they become and they also get stronger  As for keppra it is becomming the go to medication to treat seizures. All it takes to diagnose epilepsy. As for tests the major tests done by a neurologist are an EEG and a MRI. The EEG is basically a brain wave test showing the electrical activity comming from the brain. I had 20-25 different EEG's. All came back normal. I fell asleep in the last test being done in a hospital which showed seizure activity (abnormalities), By seeing where in the brain they came from the neurologists then went back and looked closer  at the normal MRI of the 1960's. . In a closer look they found scared brain tissue. So a longer EEG or one in a monitering unit might show moreThere are few cases where epilepsy runs in the family but genetic testing may not be needed. I have been taking keppra for years and it not only reduced the number of seizures I was having it also shortened the time in them. I hope this helps and he gets seizure free Joe

Hi!  I have generalized

Submitted by jkarsies@hotmail.com on Thu, 2015-08-13 - 13:53
Hi!  I have generalized epilepsy myself, diagnosed with Absence seizures since age 6.  The seizures changed to tonic clonic as I became an adult.  I am well controlled and taking Keppra.  I have a 7 yr old son who also has generalized epilepsy and also takes Keppra.  His first seizure was at 2 and was caused by a fever.  Over the next few years he had more febrile seizures, but also some unprovoked.  Our neuro's rule of them was two unprovoked seizures and time to medicate.  Febrile seizures can be normal up to age 6.  The go-to medicine for kids with generalized epilepsy is Keppra.   He tolerates it VERY well.  They start the kiddos out on a very small dose and only increase as needed.  Some scary side effects I've heard about with kids is mood swings.  Apparently they prescribe Vitamin B6 to help combat this, if your child were to have these side effects.  I've had epilepsy my whole life - currently 35 years old and live a normal, healthy life with no side effects.  Also, remember that the vast majority of kids outgrow their seizures.  Unfortunately I was not, but they are optimistic that my son still might.  Best of luck to you!

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