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2 1/2 year old with right temporal lobe partial focal seizures

Mon, 07/11/2016 - 21:39
HELP!! My 2 1/2 year old daughter had her first seizure in February 2016 she started with the rapid blinking staring off wouldn't respond when I talked then fell asleep and woke very confused and saw things that weren't there. We then saw a neurologist who scheduled an eeg which showed it was mildly abnormal and it was coming from the right temporal lobe. Soon after that she was started on keppra and started having increased seizures which she was then sent to picu after a bad one. In the hospital the did multiple eegs and video eegs and MRI 's and all come back normal not to mention she's on her forth drug vimpat and onfi and continues to have 1 - 13 seizures a day some last 40 seconds to 15 minutes long. Her neurologist is having her stay overnight to capture one to make sure she's having seizures yet multiple seizures have been witnessed by healthcare professionals can anyone help me out this is so confusing? How can a healthy child all of a sudden have seizures almost daily and normal eegs?

Comments

 So one EEG showed mildly

Submitted by just_joe on Wed, 2016-07-13 - 15:54
 So one EEG showed mildly abnormal. others show normal. Well at least the first showed something. I had 20-25 different EEG's and all came back normal. The insurance company wanted reasons so testing was started. Everything was normal including the 3 other EEG;s dond Mon-Wed. The last test was you guessed it another EEG. In which I fell asleep in. That was the first EEG that ever showed abnormalities. By seeing where they came from the neurologist then looked closer at a test from the 1960's that would be an MRI today. The closer look in that area they found scared brain tissue.Yes healthcare professionals can witness a prsons seizure. But capturing them in th video will show more. Also understand that some seizures are slight enough for a health care professional to not even know the person had a seizure. My GP didn't know I had one i his office even whn I was talking to him. He thought the 2 second delay was me trying to find the right wording for the answer to his question. In other words my seizures last abot 2 seconds compared to the 15 minutes they lasted back in 2004Amy Jo does have answers and she does have inforation which should be looked at. My answers are from my experiances I haven't researched muchOh and what ever you do if you find a meurologist you like then keep a good relationship with them because many issues can be answered an resolved in a phone call. for me they were sheaper then a visit and no waiting for the next visit

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