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Quick advice needed - boyfriend might have epilepsy
Wed, 07/19/2017 - 11:20Topic: New to Epilepsy.com
I hope someone with experience in these fora can advice me on what to do. My 27 year old boyfriend recently had two "seizures" - the first one ten days ago, the second one this morning. They consist of severe twitching over his whole body, turning grey in the face, jumping up and looking scared at me, sweating and sore muscles - the first time also rolling eyes. It usually lasts around a minute and he has no memory of the "seizures" afterwards. I am using quotation marks as we are not sure yet whether he has actual epilepsy; we went to see the GP this morning and she torwarded him for a blood test and to see a neurologist. He has made an appointment next Tuesday. My big dilemma right now is that I am supposed to go on a two week trip abroad that has been planned for months. Right now I of course don't feel very much up to it. The GP said he will be safe sleeping alone so I guess I shouldn't worry...but of course I do. If I go I will not be able to be there when he sees the doctor or has scans made at the hospital. But the trip abroad is supposed to be amazing and as said has been planned for a long time.
Has anyone been in a similar situation that could advice me on this? I don't know what the trajectory will be like...my boyfriend says I should go but I know I will be quite worried all the time...on the other hand I have been looking forward to this for a long time...
Comments
lamotrigine is probably not
Submitted by Amy Jo on Thu, 2017-07-20 - 09:23
lamotrigine is probably not the first choice for someone with certain partial seizures or certain generalized seizures so the first step is not assuming any med that works for person X will work for person Y. your bf's doc should evaluate your bf's history and personal issues before talking about med choices. if they jump to meds they'd probably suggest keppra as it can work before one gets to a therapeutic dose and one can increase it faster than lamotrigine. it also works well with focal and generalized seizure types (lamotrigine can as well but it's less helpful until one gets to a therapeutic dose).can you write out your observations (skip how you felt, that's not relevant) and see if another close friend or family member can be there for your bf?
You're considered to have
Submitted by jmom13 on Thu, 2017-07-20 - 10:59
You're considered to have epilepsy after two seizures. Does your boyfriend have family to go to the appointments? It's a long process with tests and med selection. Go on your trip. He will be fine.
WOW, now that is love, did
Submitted by whatitisepilepsy on Wed, 2017-07-19 - 19:33
WOW, now that is love, did not get up and run, he is so lucky to have you. Even if he tells you not to go it feels so good to have someone at your side, it is scary for me and my wife of almost 11 years. I've copied and pasted this to almost everyone, here you go. May I suggest talking to your doctor about a med called Lamotrging, If that dose not work, I went a whole year without arua or seizures taking a martial arts class. It was not so much what I learned, the over 100 jumping jack, stretching, working my body at least 5 days a week. You have heard it before," use it or lose it". Exercise make sense. As soon as I stopped everything came back with in a week. Good luck, life with out seizures can be amazing, always try new things don't let it win.