Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

New to epilepsy... Why so late in life??

Mon, 08/21/2017 - 19:05
I started to have seizures in 2015. I was taking Topamax for migraines. The very first time I took Topamax I had my very first seizure. Well, my neurologist figured let's just up the dose. As the dose increased and increase the seizures worsened and worsened. I had been on two previous anticonvulsant drugs for stabilizing mood because of bipolar disorder. I began to wonder if it wasn't all the anticonvulsant that caused the seizures in the first place. By the way I have focal seizures. They have always been complex partial seizures except for a couple tonic-clonic seizures and which I was still awake but not aware. I remember the first seizure I ever had like it was yesterday. My mom asked me where her purse was and then I just blanked out and then I just froze up like a board. I could hear people talking but could not answer. My eyes darted left and right vibrated like crazy. Things only got stranger from there. I started to have an aura that warned me of seizures to come. I would get this almost Pleasant sensation on my tailbone and soon found out that was the only warning I would have for a long time. Well that's the beginning of my story. I was recently put on Keppra but have found out that it makes me very tired and angry LOL which is not good for the fact that I have a 6 year old. Thanks for listening

Comments

there's no safe age, just

Submitted by Amy Jo on Tue, 2017-08-22 - 00:25
there's no safe age, just higher chance of getting it as a child or after ~65. so getting it late in life is actually more common (you aren't at that later point yet).

As you said there is nothing

Submitted by HenryM on Tue, 2017-08-22 - 13:07
As you said there is nothing for the middle age like 20-50?

I found this to be quite a

Submitted by Mixedseiz89 on Tue, 2017-08-22 - 14:08
I found this to be quite a relieving thing. I was starting to believe seriously that I had a brain tumor thank you. I do recognize now that I did have epileptic activity as a child including auditory Visual and sensory especially sensory hallucinations. I remember lying down to close my eyes and go to sleep and all the sudden with my eyes closed I would start to feel as if I were spinning around and around on a Merry-Go-Round kinda. The spinning would get faster and faster and more and more out of control until I was scared and open my eyes. I was having vertigo lying down! I'm bipolar and have seasonal depression and sometimes I believe it's the meds to blame but I just started taking Keppra less than a week ago and I've actually started to have to break them in half because they are so strong that I can't stay awake and I'm already on Depakote because of the bipolar. Depakote is another seizure drug. So when my doctor wanted to put me on Keppra I was thinking is this going to be safe but so far so good 5 days now without seizure Hallelujah

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.