Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi Im new to it all
Sat, 09/02/2006 - 18:41Topic: New to Epilepsy.com
Hi Im new to having seizures. Last year I had a seizure and no one was hom. So I had no idea what happened. I woke up in my bed w bruses on my knees elbows head and my tonge was all black in the front. Couldnt for the life of me figure out what was going on. About 3-4 months later I woke up to get my boyfriend off to work and dropped to have another seizure. Im 24 yrs old and have never had this problem before. I dont remember antyything that happened before or after the seizure for like 1/2 hr. No aura nothing. Had a couple after that and it was the same thing no aura no nothing. But since december 05 i have been fine. taking this medication (carbamezapine) and all is well but im started to think im fine yeah know maybe it was just a weird thing and will never happen agian Idk. Im not going to stop taking mty meds or anything but I was just thinking. Just got a 24 hr EEG done and a MRI so and they r talking about weather or not im gonna be a surgical canidate?! I think I rather take meds everday and have seizure every once in a while then ever have to have brain surgury!! Maybe Maybe if I was having seizure everyday and it was affecting my whole life I would consider it MAYBE but thats not happening!! But oh god I dont knowIm scared!
Comments
Re: Re: Hi Im new to it all
Submitted by Stacy Nicole on Sat, 2006-09-02 - 23:03
All these tests and stuff im just not udesed to it or ready for some kind of bad new when I get them test result back.
Hi Stacy, Please know that
Submitted by solis on Sat, 2006-09-02 - 23:15
Hi Stacy,
Please know that 3/4 of the people who have epilepsy are completely controlled via meds.
One might expect the need to try some meds, but as you are controlled already I fail to see why you should consider surgery.
Despite having E since I was age three, I was never taught to accept it so it DID affect my whole life despite the fact that I seized only once or twice per month (that I know of). Every time I seized I felt like I had 'failed' and driving was, of course, out of the question.
Even when I wasn't seizing I was commonly freaking out about the next time it would happen.
I had neurosurgery (last January) and have been seizure free ever since.
BUT, before I had the surgery I had spent my life trying to get controlled (temporal lobe epilepsy) and it wasn't until after being controlled for 10 years (at age 39) then becoming tolerant to the drugs (and having a car accident) that I even considered surgery.
Surgery has it's risks - plus there is no guarantee it will work. A man I met while in the hospital getting tested for surgery opted not to have surgery.
Sometimes when I read comments, I wonder if the American physicians are concerened more with patients or with bringing more $$ to the hospitals.
I wish you the best..
~sol
Re: Hi Im new to it all
Submitted by Joan K on Sat, 2006-09-02 - 20:30
Hi Stacy, Welcome! There are many people here who have had surgery and some that have taken meds for years and years. You should read the blogs and join in the chat room and I'm sure some people who have had surgery will be on to answer questions. I am on meds and not a candidate for surgery. I wish you all the best. There is lots of info in the main E site also. Hope to see you in chat. Hugs Joan K