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Couple of more questions please?
Tue, 05/02/2006 - 20:31Topic: New to Epilepsy.com
I saw an epileptologist today and he confused me more than my neuro. My neuro said I definately had ep but I wanted a second opinion. The epi was arrogant and just fired a thousand questions at me and I felt like I was on trial. The bottom line was he (the epi) said he didn't know if I had ep cause I said that I felt that I had a couple of absent seizures but I also reported several twitches and muscle jerks that would march up my body. He said it was not possible to have both partial and generalized seiaures so he didn't know whether I was having either one of them. He also said that my seizures vary too much and that every seizure should be the same as the last. Everything I described to him was a symptom of a seizure, they just corssed over according to him. WELL. THEY ARE HAPPENNING TO ME!!! He scheduled me for video EEG for sometime later this year, upped my meds to the max, told me not to drive till the tests proved I didn't have ep, what a jerk!!!
Questions:
1. I've read in several places that a partial can turn into a generalized. True? Isn't this an ongoing philisophical battle between neuros?
2. Are all your seizures, aura's, etc.. always the same?
Thanks to anyone that takes the time to read this and that also has any input.
Comments
Re: Re: Couple of more questions please?
Submitted by solis on Tue, 2006-05-02 - 22:37
Hi Heather
re:"I've read that a large portion (I think that it was a third) of those with TLE also experience moments that they mistake as seizures"
Could you please direct me to the article you're referring to. As somone who has had TLE all my life. I'd like to read it.
Thank you,
~sol
Re: Re: Re: Couple of more questions please?
Submitted by mommy2kyra on Wed, 2006-05-03 - 08:36
Hi there sol,
I'm trying to recall exactly what that the article was named, my memory isn't the greatest. It was on e.com I do remember that. Not much help, I know, LOL! I read it less than a year ago...I'll have to do some searching, I guess :) I'll let you know once I find it.
Heather :)
Re: Couple of more questions please?
Submitted by mommy2kyra on Tue, 2006-05-02 - 22:10
Hi there, Yes, a partial can secondarily generalize. That's not uncommon. Sometimes, the partial is so brief before it generalizes that no one picks up on the primary seizure. As far as I know, that fact is common knowledge w/ neurologists. If not, it sure as heck should be! Seizures commonly follow the same pattern for people. I do have a couple of different experiences w/ my sz's, but it has almost always been one (or all) of those happening. For example, When a c/p hit, I'd do and say the same things each time. Sometimes, a t/c would strike shortly into a s/p or t/c, sometimes not. I'm sorry that you had a rough epi visit! It is a good thing that he had lots of questions to get a decent understanding of what you're going through and ordered further testing. This way he can properly treat your seizures. I've read that a large portion (I think that it was a third) of those with TLE also experience moments that they mistake as seizures. Certainly, your epi should have taken his time with you, so that you understood his perspective and he could answer any questions/concerns that you have. Hopefully, your veeg will go well, and questions will be answered! I wish you the best of luck...hope that this has helped answer your questions. Heather :)