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Couple of more questions please?
Tue, 05/02/2006 - 20:31Topic: New to Epilepsy.com
I saw an epileptologist today and he confused me more than my neuro. My neuro said I definately had ep but I wanted a second opinion. The epi was arrogant and just fired a thousand questions at me and I felt like I was on trial. The bottom line was he (the epi) said he didn't know if I had ep cause I said that I felt that I had a couple of absent seizures but I also reported several twitches and muscle jerks that would march up my body. He said it was not possible to have both partial and generalized seiaures so he didn't know whether I was having either one of them. He also said that my seizures vary too much and that every seizure should be the same as the last. Everything I described to him was a symptom of a seizure, they just corssed over according to him. WELL. THEY ARE HAPPENNING TO ME!!! He scheduled me for video EEG for sometime later this year, upped my meds to the max, told me not to drive till the tests proved I didn't have ep, what a jerk!!!
Questions:
1. I've read in several places that a partial can turn into a generalized. True? Isn't this an ongoing philisophical battle between neuros?
2. Are all your seizures, aura's, etc.. always the same?
Thanks to anyone that takes the time to read this and that also has any input.
Comments
Re: Re: Re: Re: Couple of more questions please?
Submitted by solis on Thu, 2006-05-04 - 21:39
re:
It is always possible for even more than one side of the brain to be affected.
Please remember that the cerebral lobes ,named above, exist on both sides of the brain... http://www.epilepsy.com/epilepsy/brain.html
So if there is damage on one side, that's no reason to conclude people will be permanently negatively affected.
IMO those 5 lobe 'definitions' don't include many variances even I've experonced with TLE.
(Eg 'Deja Vu' or 'Jamais Vu' experiences sure aren't listed)
http://www.epilepsy.com/epilepsy/people.html = a page of patient experiences
I'm no epileptologist, just someone who's coped for eons. But if people can be affected on both 'sides' of their brain, I'd guess they can be affected in various lobes on the same side. To confirm, I suggest going to epilepsy.com and entering your question.
~sol
Re: Couple of more questions please?
Submitted by E_Loner on Fri, 2006-05-05 - 22:23
Hi R,
I have to respond with this, at age sixteen I went to visit a Neurologist in Michigan. The Neurologist for some reason wanted me to see that hospitals child psychologist. The psychologist questioned and tested me. The psychologist's decision was this: I was FAKING my seizures and I DID NOT have Epilepsy. My Mother, and Aunt just about blew up. I laughed. My Mother, and Aunt questioned the Neurologist and his final response was, the Psychologist did not know what he was talking about.
My point is some people do not know what they are talking about. Getting a second opinion is the correct decision, but get it from another Neuro. I see nothing wrong with a third opinion, but get it from a Neuro.
Good Luck,
E_Loner
Re: Re: Re: Re: Couple of more questions please?
Submitted by Ramblinman on Thu, 2006-05-04 - 21:18
One more thing... AUGHHHHHHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!