Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

MORTALITY OF EPILEPSY PATIENTS

Wed, 08/31/2011 - 22:54

I have read that because of epilepsy-ralated deaths, individuals with epilepsy have a mortality rate substantially higher than the general popoluation.  This is due to  SUDEP (or sudden unexplained death in epilepsy patients). 

Does anyone here know how the life expectancy of an epileptic compares with the general population when taking in account accidents that occur during a seizure? 

Comments

Re: MORTALITY OF EPILEPSY PATIENTS

Submitted by s10sleeper on Tue, 2011-10-04 - 22:32
From what I have researched, it can vary from the type of epilepsy and the focal points. Those with Simple partial seizures are at less risk than most others. Another factor is if the seizures are refractory. The risk of SUDEP in the average epileptic is 1 in 3000 per year. In adults with refractory epilepsy that take multiple meds that risk is about 1 in 100 per year. If your seizures are infrequent, the death rate is more comparable to the average person. Most epileptics do not die from SUDEP as it is extremely rare, in epilepsy related deaths they are normally due to some form of accident, and there is still alot of debate as to what exactly constitutes SUDEP. Dr. Orrin Devinsky, co founder of epilepsy therapy project wrote a good book explaining alot of it, its called Epilepsy, Patient and Family Guide. I bought it a week ago and was so intrigued I had it done in a few days, gives alot of great info.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.