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Not telling people
Wed, 10/04/2006 - 22:26Topic: Living With Epilepsy - Youth
Ok well my sister and her boyfriend have motorcycles and one of my sisters friends yelled at me for not telling him that i have epilepsy... i think that it was the right thing to do becuase i havent had one in 1 year and i was doing fine... does anyone think that i was wrong .. and if so why... i think that not everyone needs to know and that its only my business...
Comments
Re: Not telling people
Submitted by angel_lts on Thu, 2006-10-05 - 06:51
Well you should have told him. But I do understand why you didnt, for you didnt have one for a year.
I think everyone needs to know up front. How would you feel if someone had a seizure in front of you and no one told you what was happening and what to do? They would be scared as hell!
But I think someone should know when you go somewhere, at least one person. For it will be their business if you do have one. How fair would that be then?
It is a very hard topic to know what is right and wrong. But my family hid if from everyone even my eleven brothers and sisters for two years. Then I had one in front of them and they were very scared.
I was very angry at my parents for doing that too me. I mean even going through school was harder for me because of this situation. No teachers knew. It is sad.
But we all believe different and we have to do what is right for each other.
take care
Lisa
http;//health.groups.yahoo.com/groups/epilepsyapproach/
Re: Re: Not telling people
Submitted by fzMousie on Thu, 2006-10-05 - 08:13
"everyone should know upfront"??
Oh, Lisa, I couldn't disagree more. I don't want to walk around wearing a banner that says "I have TLE. If I am staring, don't worry it isn't because of that thing hanging off your nose." ;)
It is no one's business unless you are around them all the time.
So far, the people who know in my life are: My husband, my family, my boss, three coworkers (receptionist, bosses secretary, office manager), a few close friends, and we plan on telling my husband's family (but only because my mil thinks I'm gaining weight from eating too much).
Put it this way, I'm going on a ladies retreat with my church. The people who know about my epilepsy are: The woman I am rooming with and the woman I am getting a ride with.
No one else's business.
Epilepsy still has a bit of a stigma attached to it.
Re: Not telling people
Submitted by rosegirl on Thu, 2006-10-05 - 04:43
Quite honestly, I don't think you were in the wrong in any way. Unless you were putting yourself in danger by not telling. I'm guessing that you rode on the motorcycle and your sister's friend was concerned about your safety. I don't know what your case may be like but my ex-boyfriend had a motorcycle and we rode around on it all the time. I didn't tell him right away because I didn't want to scare him off but he was cool with it. What we have is something that shuns us from the rest of the world. Once we tell someone, we risk whether or not they will accept us. And I happen to agree with you; it 's your right to decide who should know or not, unless you are putting yourself in danger.