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topamax for nocturnal tonic-clonic?
Mon, 10/30/2006 - 20:41ive been on dilantin and my neurologist just put me on topamax. i am rejoicing because i hate the side effects of dilantin and the fact that all my labwork never shows that i have enough in my system to be effective no matter how much i take, but i havent seen anyone post who has been on dilantin and then gone to topamax (or i havent been looking hard enough)
my seizures are at night, but they are pretty bad... and i had an EEG that came out normal, but then again i never really got to sleep when i was sleep deprived, i just got drowsy, so i dont think they had me under the appropriate conditions? my mri was normal, just said i had some cysts and polyps that werent anything to worry about...
anyway, i was just wondering if anyone had similar circumstances or successes with the meds?
Comments
Re: Re: topamax for nocturnal tonic-clonic?
Submitted by mad_zappy on Fri, 2006-11-03 - 18:36
Oh the frustration of it all!!! well, Im 38 had E since 18 mostly have Nocturnal clonic tonic, but, a few complexed partials. I've had 3 resections which have reduced frequency and severity. last one in feb 06 and now Im on just one med WOW! Im doing pretty good on the trileptal.
Re: Re: topamax for nocturnal tonic-clonic?
Submitted by jasonv on Fri, 2006-11-03 - 18:50
I've had E since I was 12 and now I'm 29. I also have seizures only at night and my MRI and EEG always showed normal. But everytime I was sleep deprived or missed my med by 2 to 3 days, then I would seize. I currently use Tegrotol CR, got off Dilantin due to side effects of the gums. Keep strong everyone.
Re: topamax for nocturnal tonic-clonic?
Submitted by dawnyale1 on Wed, 2006-11-01 - 22:04
I went from Dilantin to Topamax and it made me feel as though I was going crazy!!! I am now on Triliptal and everything is fine. If you miss one dose you will have a seizure. I only have had seizures at night too. I have had about 2 a year for the last 2 years but on the Dilantin I had none. I got off of it because of the side effects to my gums.