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Non Epileptic Seizures
Wed, 12/31/2014 - 21:36Hello, my name is Tiffany. I was recently diagnosed with Psyogenic Non epileptic Seizures in September 2014. I was just curious if there are any tricks out there for people with NES. I know that with this condition it is mostly mental and is very much intuned with our feelings and past trama. After discovring I had this condition I have done a lot of research and it saddens me to see that many health care professionals do not know how to treat patients with PNES. So I am wondering if anyone has had any luck with their health care professionals, because I so far haven't had any. It seems like every doctor from my primary care physican to the neurologist who diagnosed just wants to put me on medication that does not work and get me out of their office as quick as possible. I have lost a lot of faith in the health care system, espically within my own state. Are there any women out there who have this condition, but are also a military spouse as well? I have not had any luck with being able to find anyone who can relate to me in the military community. I am sure I am not alone when the thought comes to mind that I wish that I had epilepsy, at least then it would be easier to treat and then the medication would help. I am very frusterated with this condition and I feel like I am alone, like nobody understands. I am just so tired of having multiple seziures a day, I keep thinking when will this all end...am I doomed to live like this the rest of my life to have seziures not being able to really go out in public because people don't undrstand what is wrong with you. Of having my sanity questioned and my indepenences ripped away, constantly having to rely on my husband to look after me for fear I might fall and hurt myself. I use to think that I was fine, that I was able to deal with anything, that I would find away to get through all the stress and be able to hold my head up high knowing that it could be worse, I could not have my independence. But now that I don't, it is extremely difficult to rely on other people when all my life I taught myself to rely on myself, almost as if my mind and body have betrayed me. I know I am not alone in this fight, I know that there are other people out there that are suffering like me, I wish that there was a convention or something for the NES people of the world to get together and share their stories...
stay strong and keep up the fight!
I wish i could speak on the
Submitted by Anonymous on Thu, 2015-01-01 - 14:24
I wish i could speak on the psyogenic non epileptic seizures but boy can i speak on epilepsy. Whatever types of those, i have had it. Mine began with a head injury in 2001 and the battle has been hard but i'm still here. Yes, some doctors don't even care and the best thing they want to do is med you get rid of you out as quickly as possible. I thank you GOD i am blessed with the neurologist i have now. Did you have 24 hr monitoring and sleep deprived eeg's done then given the diagnosis of psyogenic non-epileptic seizures?