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Non Epileptic Seizures

Wed, 12/31/2014 - 21:36

Hello, my name is Tiffany. I was recently diagnosed with Psyogenic Non epileptic Seizures in September 2014. I was just curious if there are any tricks out there for people with NES. I know that with this condition it is mostly mental and is very much intuned with our feelings and past trama. After discovring I had this condition I have done a lot of research and it saddens me to see that many health care professionals do not know how to treat patients with PNES. So I am wondering if anyone has had any luck with their health care professionals, because I so far haven't had any. It seems like every doctor from my primary care physican to the neurologist who diagnosed just wants to put me on medication that does not work and get me out of their office as quick as possible. I have lost a lot of faith in the health care system, espically within my own state. Are there any women out there who have this condition, but are also a military spouse as well? I have not had any luck with being able to find anyone who can relate to me in the military community. I am sure I am not alone when the thought comes to mind that I wish that I had epilepsy, at least then it would be easier to treat and then the medication would help. I am very frusterated with this condition and I feel like I am alone, like nobody understands. I am just so tired of having multiple seziures a day, I keep thinking when will this all end...am I doomed to live like this the rest of my life to have seziures not being able to really go out in public because people don't undrstand what is wrong with you. Of having my sanity questioned and my indepenences ripped away, constantly having to rely on my husband to look after me for fear I might fall and hurt myself. I use to think that I was fine, that I was able to deal with anything, that I would find away to get through all the stress and be able to hold my head up high knowing that it could be worse, I could not have my independence. But now that I don't, it is extremely difficult to rely on other people when all my life I taught myself to rely on myself, almost as if my mind and body have betrayed me. I know I am not alone in this fight, I know that there are other people out there that are suffering like me, I wish that there was a convention or something for the NES people of the world to get together and share their stories...

 

stay strong and keep up the fight!

Comments

I live in Missouri. And haven

Submitted by Anonymous on Tue, 2015-01-13 - 11:41
I live in Missouri. And haven't been able to find anyone who really can treat this. You keep hanging in there.

hi sue what was the virdict

Submitted by Anonymous on Thu, 2015-01-29 - 11:13
hi sue what was the virdict on yhe sleep deprived test 

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