Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Hello... I'm new to this forum :)

Tue, 04/11/2006 - 17:52
Hello. I have been reading some of your posts, and they are very informative. I have found a few different sites over the past few days and I have found all of them to be very helpful. If your interested here is my story... I had my first Seizure when I was 9 yrs old. My last seizure (#4) was 3 wks ago, I am now 32 yrs old. Most of my life I have been on Mebaral. If you have heard of it, please let me know....Nobody has!!! It's a very old drug. Anyway, when I was young the Neuro's told me that my seizures where called "slumber seizures", not enough sleep, not eating properly, ect. All of my EEG's have been normal. The seizure I had 3 wks ago was my first grand mal. I whacked my head pretty heard, but luckily didn't cut it open like I have in the past. I have read that a grand mal is only a "grand mal" if you lose bladder control, and bite your tongue,along with all the other symptoms. I have never done either one of those two things. I was completely out of it for at least 30 min. Not to mention not being normal for several hours. Well, I just wanted to say hello and introduce myself. I hope you are well. Take care :) Stacey

Comments

Re: Hello... I'm new to this forum :)

Submitted by phylisfjohnson on Wed, 2011-05-04 - 09:16
Tonic–clonic seizures (formerly known as grand mal seizures or gran mal seizures) are a type of generalized seizure that affects the entire brain. They generally involve a loss of consciousness and violent muscle contractions. (Not necessarily biting your tongue or losing bladder control.) Grand mal seizures have two stages. Tonic phase. Loss of consciousness occurs, and the muscles suddenly contract and cause the person to fall down. This phase tends to last about 10 to 20 seconds. Clonic phase. The muscles go into rhythmic contractions, alternately flexing and relaxing. Convulsions usually last for less than two minutes. The following signs and symptoms occur in some but not all people with grand mal seizures. Aura. Some people experience a warning feeling (aura) before a grand mal seizure. This warning varies from person to person, but may include feeling a sense of unexplained dread, a strange smell or a feeling of numbness. A scream. Some people may cry out at the beginning of a seizure because the muscles around the vocal cords seize, forcing air out. Loss of bowel and bladder control. (SOMETIMES) This may happen during or following a seizure. Unresponsiveness after convulsions. Unconsciousness may persist for several minutes after the convulsion has ended. Confusion. A period of disorientation often follows a grand mal seizure. This is referred to as postictal confusion. Fatigue. Sleepiness is common after a grand mal seizure. Severe headache. Headaches are common but not universal after grand mal seizures. ALSO, in my humble opinion, EEGs are not the be all and end all of diagnostic testing. An abnormal EEG does not diagnose epilepsy nor does a normal EEG reading exclude it. I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring. Video EEG Monitoring – allows prolonged simultaneous recording of the patient’s behavior and the EEG. Seeing EEG and video data at the same time, permits precise correlation between seizure activity in the brain and the patient’s behavior during seizures. Video-EEG can be vital in the diagnosis of epilepsy and epileptic seizures. It allows the doctor to determine:whether events with unusual features are epileptic seizures…the type of epileptic seizure, and…the region of the brain from which the seizures arise. I hope this is helpful, rather than confusing! Phylis Feiner Johnson www.epilepsytalk.com

Re: Hello... I'm new to this forum :)

Submitted by VanessaW on Wed, 2006-04-12 - 00:02
Hi Stacey, I'm glad to see you on this site WELCOME!! It is very friendly and very informative. I have to admit even though I take medication to control seizure activity I really don't know all the names for the different kinds of seizures and what each one actually means and how a person is affected by it. I hope you find the answers to all your questions and I pray God will watch over you :) Best, Vanessa

Re: Hello... I'm new to this forum :)

Submitted by scorpio on Wed, 2006-04-12 - 10:51
Mebaral is a barbiturate, a cousin of the more common AED, Phenobarbitol. As far as epi is concerned the barbiturates are rather sledgehammer in the way they behave - in my opinion anyway - especially in the context of their side-effects (sedation mainly). There are many other AEDs around that are worth seeking advice about which should be easier to live with. Having been around since before WW2 the barbiturates do have the merit of being cheap, however. I took phenobarbital briefly when I was about 10 years old: performance at school plummeted for the duration, I recall. Mebaral was discontinued in the UK some years ago, and probably elsewhere too. Chris.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.