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Hello... I'm new to this forum :)
Tue, 04/11/2006 - 17:52Hello. I have been reading some of your posts, and they are very informative. I have found a few different sites over the past few days and I have found all of them to be very helpful.
If your interested here is my story... I had my first Seizure when I was 9 yrs old. My last seizure (#4) was 3 wks ago, I am now 32 yrs old. Most of my life I have been on Mebaral. If you have heard of it, please let me know....Nobody has!!! It's a very old drug. Anyway, when I was young the Neuro's told me that my seizures where called "slumber seizures", not enough sleep, not eating properly, ect. All of my EEG's have been normal. The seizure I had 3 wks ago was my first grand mal. I whacked my head pretty heard, but luckily didn't cut it open like I have in the past.
I have read that a grand mal is only a "grand mal" if you lose bladder control, and bite your tongue,along with all the other symptoms. I have never done either one of those two things. I was completely out of it for at least 30 min. Not to mention not being normal for several hours.
Well, I just wanted to say hello and introduce myself. I hope you are well. Take care :)
Stacey
Re: Hello... I'm new to this forum :)
Submitted by janronk on Fri, 2011-04-29 - 16:34
jan keegan ronk
Mebaral has been the drug that has worked for me for 41 years. i have no side effects and i am terrified the Lundbeck is being so shortsighted and prejudice to those of us who need it while they make expensive patented drugs for epilepsy. We are becoming a forced experimental group first mysoline than mebaral. All I know is everyone who is being forced to stop this medication on such forced short notice should be aware of this.
jan keegan ronk
Mebaral has been the drug that has worked for me for 41 years. i have no side effects and i am terrified the Lundbeck is being so shortsighted and prejudice to those of us who need it while they make expensive patented drugs for epilepsy. We are becoming a forced experimental group first mysoline than mebaral. All I know is everyone who is being forced to stop this medication on such forced short notice should be aware of this.