Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
He gave up.
Fri, 11/17/2006 - 13:17=(
That didn't take very long. My neurologist has given up on me. He is sending me back to my jerkoff of a family doctor.
Either I don't have a seizure disroder, or I don't have one he can treat.
He's troied me on two medications. TWO!
Apparently "exhausted and frustrated" are sinful evil words that put my condition outside his realm of expertise. And I should be able to know when and where and how often my seizures are. I guess it is a bad things that I cannot describe them or that I don't even really know what a seizure is.
And asking him to write a note to my gym so that I could get out of the last 3 months of my contract was also a bad hing.
I'm so beyond upset right now.
I can't stop crying.
Comments
Re: Re: He gave up.
Submitted by fzMousie on Fri, 2006-11-17 - 14:38
I've been doing that.
But he doesn't want any part of what I've written. I journal concisely. Just the facts, the dates and times that I am aware of.
I journal anything odd.
I'm trying so hard to be a good patient!! I'm doing everything I am told to do.
I'm trying so hard to be a good employee, too, but I can't even do that.
I had an eeg done. 20 minutes in a comfy room chatting with a friend. Yeah, sure I'll have a seizure. I also had an mri, which was normal except for the incidental finding of a 2mm cyst.
He mentioned something about an epilepsy centre, but i was completely not there. so maybe he's sending me down the line to someone else. he's writing a letter. i want to know what is in that letter.
i feel pushed around.
Re: Re: Re: He gave up.
Submitted by Gina Marie on Fri, 2006-11-17 - 14:49
You are being a good patient. And you certainly have a right to demand a copy of the letter and for him to explain the content. Put it in writing, a request for a copy of the letter before it's sent out. When things are put in writing, they can't be ignore. I'd also suggest typing a "report" of what you've written in your journal for each appointment, make it part of your medical record. When you go to your new doctor especially.
Re: He gave up.
Submitted by Gina Marie on Fri, 2006-11-17 - 14:33
No offense, but what a jerk. Definately go back to your regular MD, this time ask for a referral to a doctor that has a clue. Also a good idea to start writing things down. I did that, started keeping track of my seizures, it helped my doctor. But I didn't have to convince anyone, the EEG convinced them, my accounting just helped them have a clearer picture, did you get an eeg done? Don't doubt your reality. You just need to find a good neurologist. I wish you could see mine, there's good ones out there, don't give up.